I’m wondering if, after being diagnosed with chiari, if anyone was told that their symptoms were atypical to Chiari-malformations and needed further testing to rule out other things before getting into discussions on surgery??
I was just at my first appointment today and the neurosurgeon told me that I do have Chiari but that my symptoms are atypical. They told me that because of my vision issues and the type of headaches I get that it could be related to intracranial pressure and migraine/tension headaches… I’m being sent to a neuro ophthalmologist and the headache clinic for further testing… I still don’t have the answers I want… Has anyone else been through this? Thanks