I was just informed that my Vertigo is caused by Labymentheitis (pressure on the inner ear) but they kind of shyed away when I asked about that and my CM1. Has anyone heard of this before?
Sorry I have never heard of this..now I must Google it!! Sorry I am of no help.....So sorry you have this too , to deal with.
keep us updated on how you are.
I had to google it also. Did you have a CT Scan or another test showing the Labyrinthitis? From '07 to '11, I was told my vertigo was Benign paroxysmal positional vertigo. I was taking Valium to help with it and last year had an Epley Manuever in March to help. I think this manuever made my Chiari flare up. Since surgery in Sept '11, I have not had any vertigo so I believe my chiari was causing the vertigo not BPPV.
Good Luck! Hope you find something for relief because having vertigo all the time is awful.
I have had two CT’s that show it was nothing else. My file and my Doc’s know about my CM1 but I went two years symptom free and these symptoms are new so just wanted to check.
Thank You for the kind replies and the good info Best of luck
Good afternoon. Today is my first day on this support site. The reason I decided to join a support group after 5 years of living with a fairly mild case of CMI is that I had a scary incident this past weekend with severe vertigo. In the E.R. I was diagnosed with Benign Paroxysmal Positional Vertigo (BPPV). I had considered inner ear issues as possible causes but because of the Chiari I was apprehensive and therefore chose the E.R. route for treatment. When they diagnosed the BPPV I found myself questioning whether or not anyone else out there with Chiari has had problems with severe episodes of vertigo. I have vertigo all the time that last a matter of seconds and I carry on with my daily activities as if nothing were wrong. But this time I was completely immobilized and could not stand on my own without assistance - and barely even with assistance! So, now I am curious to have a follow up and discuss BPPV with my PCP, as well as the labyrinthitis you speak of. Very curious... I'm glad you posted.
Hi there, I suffered from Vertigo, nausea, etc spells for 14 years, diagnosed as Meniere’s disease, before my CM1 diagnosis. I had decompression surgery in November and haven’t had any spells since, I am hoping it is a result of CM1. Praying for you that you find some relief, I know how miserable it is. I keep antihistamine on hand if I feel a spell coming on it sometimes helps. I also keep meclizine and phenergan for the bad spells. Hope that helps.
Hello misallen, thanks for your input - it helps to hear other people's experiences. I was given meclizine in the E.R. and got a pretty good result and resolution of symptoms with taking it. I have taken it now for the last three days and have not had anymore vertigo to speak of. I will stick with that for now - keeping it on hand in case I need it. Otherwise, I am hoping not to have an event like that any time soon!