I’m new to the site. I found out about Chiari Malformation by accident. However, everything makes sense now. Here’s a brief overview of my story
When I lived in Texas in 2009 I was having a transesophageal echocardiogram for another issue when it was discovered I had CM. While under general anesthesia the Dr asked if I had headaches. Assuming she was talking about the current procedure, I said no.
In 2012 my husband and I moved to Arizona and the very week we were set to leave I was rear ended and was transported to the hospital. Shortly after this is when all of my issues began. From the headaches, stiff neck, memory loss, difficulty concentration and finding the right words for the most basic conversations. At first I put it off as the stress of the move and getting acclimated to my new location or side effects from the accident. Well things continued to get worse, especially the debilitating headaches. The headaches became a regular occurrence and continued to increase in intensity. Next came the extreme back pain, stiffness in my right forearm and challenges with holding utensils in my right hand.
I made appointments with my local physician and explained about my headaches and back pain. Well to no surprise they stated I seemed fine and that I could be dehydrated.
Present day: things finally came to a head where my symptoms were not getting any better, in fact worse. I started reading up on my symptoms and saw MS and really began to get fearful. I made another appointment (this past July) with my physician again. While waiting for the appointment something told me to look at my online medical treatments/history (military site). So as I was going back by date I ran across the procedure from 2009 for a completely different issue and noticed a statement that said “appearance of chiari malformation”. This is when I began my research on CM by reading any and everything I came across. At my appointment I mentioned this to my physician who also had access to the same information. I immediately requested a referral to a neurologist. So here I am, waiting for the appointment that isn’t till Oct 12th.
One isolated event that occurred really makes me wonder if the accident truly caused my CM to come to the surface: I had an appointment with my hairdresser which I’ve done for years, but out of nowhere when it came time to lay my head in the sink I almost passed out from the pain. It was so bad that I had to keep my head elevated in order for the pain to stop. I have not gone back since then (Dec 2015). Reading some of the stories on this site I found someone else having the same issues, however sounds like post op.
I apologize for the length, I just wanted to give an overview. I do however have a question for the group: what type of questions should I have prepared for my appointment? Is there anything in particular I should say to make sure they request the most accurate exams? I’ve read about the Cine MRI, should I ask for that as well?
Thank you in advance!