“I have read so much conflicting information I don’t even know what to think anymore” I notice you have ‘lol’ and the end of that sentence but I haven’t included it because as far as I’m concerned its not very ‘lol’ at all. The net is a great place to get information but as you have found it can be so confusing, and I’m sorry to say that the same goes for dr’s. What one dr may see as minimal another may see as major.
Dr’s are scientists. In science A+B=C, Cause ‘A’ + Symptom ‘B’ = Diagnosis ‘C’. In physics and chemistry A+B=C works, but in biology it is not as black and white, there can be 1000’s of variables, for example environmental factors, physiological factors etc all have an impact so its not a case of just A+B but more A+B+C+D+… and neurology is biological. To add to the complexity of it all, no two brains are wired in exactly the same way. An individual can have pressure in exactly the same place as another but have vastly differing sensation. For example, a back injury can seem minimal for one person but debilitating for another and this can be an example of where A+B does not always =C. It can also depend on which nerves are affected, if its the nerve to the big toe then the physical consequences can be minimal, but if its a nerve to the heart that could be deadly. So again the theory of A+B=C is not always correct, there are many variables.
I do not have chiari, but I do have a brain condition that has caused a deviation of the brain matter and I find it rather confronting when a dr says things like “Well that shouldn’t be happening…” or “…you shouldn’t be having pain like that…” and I agree, I shouldn’t, but I am. So my question to them is “So what are we going to do about it?” Many may recommend a ‘wait and monitor’ scenario, like ‘Let’s see what happens’ But if there is any change, any ‘weird sensations’ record it, tell them. I have had dr’s ignore symptoms, but when I’ve later spoken to the surgeon and explained to them they have been extremely concerned. Each and every dr I have seen has had a differing opinion, so, IMO, do not be taking an individual dr’s opinion as gospel. It is never a bad idea to get a second opinion.
Best of luck with it all
Merl from the Moderator Support Team