I have not introduced @Bronwen yet, but before I could she dug deep into our posts and found a great post! 27 Aspects of Chiari Malformation I’m Learning to Live With Please give it a read! It has so many aspects that are heart-wrenching, but so many that are so inspirational, shout out to @Bronwen for digging it back up!
Bronwen is from South Africa and was just diagnosed but has had symptoms for a long time. She is teaching herself about alternatives to sugery for chiari