I am four months post surgery and struggling with an increase in symptoms and am wondering if other people have had similar experiences.
Prior to decompression surgery in April, I dealt with a persistent low-grade headache most of the time. On top of that, I had issues with extreme pain when I laughed, sneezed, etc. I also couldn’t lie down for extended periods of time without getting a nasty headaches that would last for a day or so. Only on rare occasions did I have issues with moving my head too quickly, standing, or bending over. Barometric changes affected me greatly. I also had serious neck pain that had been attributed to pinched nerves in my neck.
Since the surgery, the tightness in my neck has relaxed significantly. (This is an amazing result that no one even mentioned prior to the surgery and I am very happy with.) However, many of the other symptoms persist and are actually occurring more frequently. It seems like I now get a headache 5-6 times a day when I stand up. (Again, this almost never happened before.) Bending over nearly always results in a headache. Both are also accompanied by dizziness. The instances are usually brief, but can sometimes last a bit, and they are more painful than before. I still get headaches when I sneeze, though they aren’t always as painful and they don’t seem to last as long. Most physical activity seems to cause a headache as well, which has really put a damper on my hiking this summer.
My neurosurgeon has been very unhelpful in explaining what is going on and has basically told me to continue to relax for longer. I’m going to work but I’m not hiking or doing much physical. (Even a 30 minute walk around my flat neighborhood last night gave me a headache!) My neurologist ordered an MRI at 2.5 months and nothing unusual showed up. He wants to medicate me more, which I am not thrilled with as I tend to react poorly to medication. Neither of them is able to tell me what’s going on, which is super frustrating. I certainly wasn’t expecting an increase in symptoms coming out of the surgery and it would be nice to know what’s causing them.
Has anyone else here experienced an increase in frequency of symptoms similar to this? Is this something the usually occurs and my NS just didn’t bother to tell me? Any help would be appreciated.