Hello everyone. I’m hoping to get some input on this concern because we are frustrated and have basically his a brick wall. Little Mason hasn’t be able to eat anything for the past few days. Every time he tries to eat a solid food, he’ll chew it then he’ll take it out of his mouth. He even tells us that his throat hurts. He also said that his ear hurts as he put his fingers in both ears. The ear thing only happened a few times that we’re aware of. He even stopped drinking anything for about a day or so. Also, when he was sleeping at night, he sounded very congested or like something was wrong with his lungs…kinda like he sounded right after surgery when they had to “suction” his lungs a couple times. My daughter (his mother) called his doctor and he said that this should go away. That was a few days ago. Well, this continued for another day or so. My daughter called again and this time they said that they wanted to see him. Once with his NS, they ordered another MRI. This was completed. So, my daughter waited to hear from the doctor (still at the hospital) and then a nurse came out and told them that they could leave and the doctor would call them. Nobody every checked Mason’s ears, lungs or throat! Lisa (Mason’s mom) asked the nurse about this. The nurse told her again that the doctor would call them. Well, of course Mason still had the same issue all evening, so Lisa called the doctor again. All they told her was that the MRI looked “as it should” (whatever that means). Lisa asked about Mason’s throat and so on, but was not given any answers. So here we are today and Mason still can not eat…he’s tried, but he can not eat. He finally did drink his protein shake from his bottle today, but could not eat any solids. Lisa is still waiting for a return call and it’s been several hours today since she left another message. She will cal again and again to try and get some answers.
Is this normal for this to happen after the decompression surgery? I could understand a couple days or so, but it’s been 11 days! If it is normal, shouldn’t the NS have told them that? Does he simply have a cold, virus? Oh yeah, the NS did tell Lisa that Mason’s inability to eat shouldn’t be related to the surgery/Chiari! If it’s not related, shouldn’t he or another doctor (Ear, Nose and Throat doctor) examine Mason before he left the hospital? Of course we are extremely frightened of the “unknown” and if this is all “normal” or not, and if Mason will become weak if he can’t eat. We are so frustrated, scared, upset and angry! Can someone please shed some light for us? Mason’s activity seems to be pretty good. He still plays, horses around like a little boy. Mason does not have any high temperatures either. We actually purchased one of those “forehead” thermometers for him. His temp had been 99 for a day or so, but pretty normal other than that.
Thank you in advance. Please help us help Mason…