My headaches have come back, I have terrible ringing in the ears, breathing problems, edema and heart palpatations. Was wondering if anyone else has had a decompression surgery fail, also??
Have you had a post op CINE MRI to see if your csf flow has been restored? It could also show scar tissue that could be causing issues.
Other than that I would look into POTS given the heart palpitations. It seems a lot of chiari patients also have POTS.
Best of luck and let us know how you are doing!
Thanks, Anglyn, I’ll look into that. I also ended up with a horribke infection in my head4 weeks post op. All the specialists I’ve seen thinks the symptoms I have is due to the trauma if surgery and the infection, which is non treatable
Anglyn brought up a great thing re: CINE MRI.....have you spoken with your NS?? Keep us posted.
Good luck and hope you are feeling better today.
Have you got any resolve on the breathing? I am currently 1 year post op but have been having breathing problems since right after the surgery and nobody can figure it out.