Chiari Malformation - Online Support Group
We are patients and survivors of Chiari (types I-IV), here for your support.
Chiari ~ a decompression surgery. This consists of a craniectomy, a laminectomy, and a duraplasty.
My daughter is a Chiari and Syringomyelia survivor.
Her battle is just beginning. But she is strong and will get through this at the tender age of 8.
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Comment by Valaree on November 28, 2011 at 8:53pm What a neat video. Such a brave and beautiful little girl. I am a Chiarian as well, but also the mother of a Chiarian. Some times I wonder if being the mother is worse... I pray her journey is as easy as it can be. It looks like she has a great support system!
Comment by Julie Schultheis on August 13, 2011 at 12:05pm
Comment by Tiffany P on August 10, 2011 at 1:13am
Comment by Christine on June 22, 2011 at 8:04pm Just incredible!! What a courageous little lady and very loved by such a beautiful family!! I'm headed for surgery in Aug, poss. Sept. I'm scared to death. After seeing this video, it's given me some courage to say if this little sweetie can do it, I can. Thank you Alexis and thank you to her mommy and family for sharing your story with us.
Love, Christine XO
Love, Christine

Love her video, she is my hero too. She is so beautiful and brave.
Love, Abby
Comment by JenniferH on May 2, 2011 at 7:53am This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
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