Trying to figure out what to do next

Hi Everyone,

It's been a while since I've been on here and posted anything. I don't know how many of the people involved in this group also suffer from spina bifida or hydrocephalus, but if their is anyone that does or knows information about what I'm about to post, please feel free to respond.

I was born with spina bifida Myelomeningocele as well as hydrocephalus. Having had both since birth, I've also had a shunt because of the hydrocephalus. I started experiencing symptoms such as tingling in my hands and face, extreme tiredness, extreme thirst, weakness in my feet and legs, memory loss, some blurry vision, bad kinking feelings in my neck and the right side of my head where the shunt is placed. Some pain on the right side of my body, the pain has begun to run down my right arm.

I found a neurosurgeon here in Ohio that was knowledgeable in Chiari, he did CT scans and MRIs but decided in the end not to do the Chiari surgery at the time. But he did go in replace the valve that is connected to my shunt. But I'm still having a lot of difficulties, now I'm trying to figure out what my next approach with my doctor should be. 

I was hoping to come on here and get some feedback from people here. I know peoples problems and symptoms are all different, and each illness effects people differently, but I was just wondering if I could some feedback from people that have spina bifida as well if their are others here, and if not, any feedback everyone can give me on the actual Chiari surgery, I would greatly appreciate. Not knowing what my neurosurgeon will decide to do at my next appointment, but I just would like to know if the people here that have gone in for the Chiari surgery feel like it was beneficial or if it didn't really improve anything. 

Like I stated above, any feedback I can get from anyone will be very helpful, thank you. 

Megan