Syrinx

Hi. I am looking for people who have syringohydromyelia, a spinal cord cyst filled with fluid that leads to Chiari II malformation. The shorter term is syrinx. Mine exists from a fall on Dec 9, 2007 on my spine due to slipping on the ice. It started from thoracic 5 and had spread to thoracic 10, (T5 to T10) last MRI Jan of 2011 and due for a new one...it is growing downward for now. I have other autoimmune disorders so I wanted to find the symptoms of the syrinx and talk to others so I can distinguish the difference between them both....one odd thing  is when I raise my arms in the air a sudden chill comes to my whole body and cant get warm...my body temp last taken was 95.7 F which is really low and always cold....could be thyroid or syrinx, I have no idea....any thoughts or input would be of great help to me...if you know someone with a syrinx please put me in touch with them...my email is jeffgreenswife@gmail.com thank you.

Bella