syrinx

Hello, I developed a syrinx, syringohydromyelia from a slip on the ice Dec 9, 2007. Slammed my spine on the ground at thorcic 5 level and now years later have this spinal cord cyst filled with fluid from T5 through T10 and is growing downward. My neuro told me to go to support sites for Chiari so here I am. The possibility of me developing Chiari II malformation in the furture is eveident. I am looking for someone similar to speak to about treatment and symptoms. I have all types of awful symptoms but one in particular I wanted to speak about was my body temperature. When I raise my arms in the air a severe chill over comes me and I can not get warm. I have a steady body temp of 95.7 and thinking its the syrinx or thyroid...If there is anyone out there who can put me in touch with someone similar please do. My email is jeffgreenswife@gmail.com - thank you...

Bella

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Comment by Caroline Power on February 10, 2012 at 10:31am: Hi bella

I dont have dat feeling but i get cold really suddenly and cud shake for up to 40 mins. Its really hard to keep warm as i also live in ireland where its cold alot so dat doesnt help me. If im in a warm position and move i get really cold and it takes ages to warm up up again. Hope ive helped

Love caroline

Comment by Bella on February 7, 2012 at 7:34am: Hi Caroline and andieK, Yes it is a big struggle to keep warm. Now yesterday my body temp went to 98.4 and felt feverish...too strange...I was wondering if any of you have that "cape like" feeling under the arms when you move them? I do, well I did in the beginning and also when sleeping if I am abruptly waken by the phone I wake up and reach for the phone and I have severe body tremor that wont seem to stop for a good length of time...20 minutes or more....anyone feel that also?

Bella

Comment by Caroline Power on February 5, 2012 at 11:12am: Hi bella, my name is caroline and i have cm/sm. I find dat i too get really cold and struggle to keep warm if u wanna chat im here for you.

love caroline

Comment by Andrea on February 5, 2012 at 10:28am: I am so sorry to hear about your condition. I don't know anyone with the your symptoms, but I will keep my eyes open for you. But i can assure that this website has been very helpful, and the people on here are wonderful. Hopefully someone can help with questions. I will keep you in my prayers. Andie