Chiari Malformation - Online Support Group
We are patients and survivors of Chiari (types I-IV), here for your support.
Surgery
Dr. Oro said that my daughter has a very serious malformation, not the worst he has seen but very serious, 15mm. with very little flow. We are going to schedule surgery next Tuesday, I hope they are able to get her in soon. She has had so many problems for so long and always been diagnosed with something else. Now she can hardly function. Family support has been on and off. It has been a blessing to hear all of your story's, it has helped so much.
Comment
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Comment by Joedy on February 17, 2012 at 9:17pm -
Thank you Amy! Surgery is March 6th in Denver.
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Comment by Amy Wright James on February 16, 2012 at 1:20am
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I will be praying for you and your daughter. My son's pediatrican ordered the MRI because she thought he may have had a stroke or a seizure and it actually showed CM, and we will see the neurologist on Friday to find out exactly how serious it is. Please update us on when and how the surgery goes.
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