Nervous for my First Neurosurgeon Appointment!

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Moderator Comment by Abby on January 25, 2011 at 10:37am

If your MRI is 10-11, you are not borderline Chiari!  Your doctor sounds like a very wise doctor, not wanting to rush into anything and testing you.  The CINE MRI is a great test they do to find out how much of your Spinal fluid is being blocked from reaching your brain.  I am so so thankful he is testing you first.  This should tell you a lot and so glad to know you have trust and confidence in him.  Go prepared with your questions, symptom list, and as much knowledge you can.  Ask folks here and do your homework.  God Bless you Kristin, know we are here for you.  Take care of yourself and please keep us informed.  Abby

Comment by Kristin Leonardo on January 25, 2011 at 9:53am

Hey guys. The neurosuregon appointment went ok. I talked to the doctor for about an hour and he changed my diagnois to Boarderline Chiari. Im very confused .My first MRI in 2009 shows 5mm. The most recent for 12/21/2010 shows 10-11mm. He does beileve it is causing my headached but not my other sympthoms. That is what every other doctor has said and then dropped my case. But this doctor was different, he is continuing to see me untill he finds an answer. That is what makes me beileve he is a good doctor. He has requested i get a CINE MRI. Im in the proceess of getting authroization for it then im on my way. I was very upset last night because i get overwelhmed and frustrated everytime i talk about lately. Im soo used to hitting dead end but i know now that if i stop fighting, there will not be a good outcome. I need to fight for my health. Im 22 years old and feel like im 50. That is not normal and i just want my life back, as close to a 22YR OLDS LIFE SHOULD BE!!!! thank you guys for thinking of me<3

Moderator Comment by Abby on January 24, 2011 at 8:21am

Will be thinking of you Kristin, your aunt will be a great person for your support.  Have your questions, symptoms list and any thing you can think of along with you. Let us know how your appointment went.  Sending you prayers. Abby