Chiari Malformation - Online Support Group
We are patients and survivors of Chiari (types I-IV), here for your support.
Introduction............
Hello, I just wanted to introduce myself. My name is Antoinette, 48, and was diagnosed with CM/SM - stage 3 2 1/2 years ago. I have tried to find a local support group since then and have had NO luck. I currently live in Buffalo, NY but will be moving to Rock Hill, S.C. in 4 weeks. My daughter started an online support group for me on facebook and I have met 4 people so far with this disease. Today a friend of mine sent me this link and now I am here. I have so many questions and am trying to learn more and more about this disease, so I am very happy to be here. I am a mother of 3, and a grandmother of 4, and currently single. I am happy to connect with other people and compare symptoms, of course NOT happy to have this disease, but sometimes it helps knowing I'm not alone. Hope to meet many new and wonderful friends here. Thank you,
Antoinette
Comment
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Comment by GabyVaz on September 30, 2011 at 8:44pm -
Hey welcome !
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Comment by colorpurpleilove on September 27, 2011 at 6:48pm -
Hi Liliy, Thank you so much, I never even thought of looking up Chiari in youtube. I will be doing that tonight. Thanks so much.
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Comment by colorpurpleilove on September 27, 2011 at 6:46pm
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Hello Lori, Im doing OK...... been suffering some truly severe headaches in the past week, they have been knocking my socks off, wow. How are you doing??
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Comment by lillyof64 on September 23, 2011 at 9:20pm -
Hi Antoinette, I totally am in the same boat, so many questions!! I was doing some more research today, and I found some videos on youtube. Just enter Chiari on the search there, and you will find quite a few videos, even some of decompression surgeries! If you ever want to chat, let me know, we might have some of the same questions, and I will share what I find out with you.
cheers, we are not alone in this any more!!
T
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