Chiari Malformation - Online Support Group

We are patients and survivors of Chiari (types I-IV), here for your support.

God has given me the gift of the most amazing childern. Tonight was their home comming football game. They had been working with my mom all week making flyers and chiari awarness ribbions. They took these things to their home comming game and collected donations for my medical expencess, but thats not even the best part. They also passed out all the chiari awarness ribbions and got their whole school to wear purple on tuesday in support of chiari and my surgery. You have to understand that I live in a very small town and both my husband and I have lived here our entire lives. To get this kind of support and have all of my kids friends and classmates supporting them just fills me up with pure joy and I wanted to share it with you. A 13, 11, and 6 year old did this. Chiari is no longer an unknown disorder in this little part of the world because of them.

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Moderator
Comment by Lori D on January 22, 2012 at 12:55am

This is the 1st time I've read this post and it truly warmed my heart and filled me with joy.  What wonderful children you have raised.  You should be very proud of them, as I'm sure you and your spouse both are!

What a great story..... thank you for sharing!

Lori D 


Moderator
Comment by Abby on October 17, 2011 at 9:19am

Your Children are awesome.  You are loved, cared for by so many folks. You are a blessed lady, and having support of your amazing children, is priceless. 

God Bless you and your Awesome children.

Love, Abby


Moderator
Comment by lori on October 17, 2011 at 9:12am

Hi....

 

 

Doesn't that make you feel as though there really are great people in our world.....All we see/hear on the news is bad stuff..thrilled to know your town sincerely loves and cares for you..plus, a HUGE PLUS..getting the info out about Chiari Malformation....

 

Your profile picture is just gorgeous...what a nice family..God Bless you all.

 

Peace,

Lori

Comment by luvmy2grls on October 15, 2011 at 7:53pm
that's SOOOOOOOOO  awesome!!  Thank your for sharing!
Comment by JenniferH on October 15, 2011 at 3:32am

How wonderful!!! I have dreamed os small town living my whole life. My husband is a Philadelphia firefighter so we can't leave the city. Well at least not until retirement! Your kids sound great...you are blessed.

 

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