a couple of questions...

Comment

Comment by Christine on February 3, 2012 at 8:45pm

THANK YOU SO MUCH! MAKES ME HAPPY TO HEAR HOW WELL YOUR BABY IS DOING.  GOTTA LOVE KIDS, THEY ARE TROOPERS.  HOPE SHE CONTINUES TO HEAL FULLY. 

 

CHRISTINE XO

Comment by Dawn Stouffer Toy on February 3, 2012 at 5:31pm

Thank you sooo much Christine....im sorry u still feel badly. My daughter is happy and active as ever you would never even know she had it done...but it makes me feel better knowing that someone else has swelling 5 months post op we are just a few days shy of 3 months post op and i think the swelling is starting to go down some...i hope u continue to continue to make progress :-)  

Comment by Christine on February 2, 2012 at 4:45pm

OH YEA, YOU CAN FIND OUT THROUGH CONQUERCHIARI.ORG FOR A WALK IN YOUR ARE.

 

:)

Comment by Christine on February 2, 2012 at 4:31pm

Hi Dawn.  So good to hear that your baby doesn't have fluid build up.  Thank goodness!  A repeat MRI in 5 months is good.  Then you'll be able to see if there are any changes.  How is she doing?  Happy and playing I pray. 

 

I am 5 months post op and still have swelling and I do have fluid build up aka pseudomenningocele,  This is an abdormal build up of fluid from the dura (covering of the brain) when I had surgery. They said I must have had a CSF leak. I've been told pretty continuously that this is normal post op recovery and that 5 months post is still pretty early in the recovery stage.  I feel awful and I sure hope this is correct. 

 

Just keep a close eye on her as I know you will.  Kids are resilent and I'm sure she is going to recover nicely.

 

Keep us posted.

 

Christine XO