Member Resources

LINKS

• Conquer Chiari: Tons of resources, information on symptoms, diagnosis, treatment, spreading awareness, support and much much more!
• Conquer Chiari Symptoms PP Presentation: Great Powerpoint presentation on the symptoms and differences in Chiari patients!
• Conquer Chiari Diagnosis PP Presentation: Powerpoint on Diagnosis
• Conquer Chairi Treatment PP Presentation: Powerpoint on Treatment
• American Syringomyelia & Chiari Alliance Project: Great source for information, research, support, and more!
• World Arnold Chiari Malformation Association: Committed to the most accurate and current understanding of Chiari Malformations and treatments.
• The Disability Digest: resources and information about how to navigate the social security benefits maze
• Patient Power: original content and information to help empower patients
• Livestrong.org (1-855-220-7777) Want to talk to someone about your situation? LIVESTRONG is here to help. We provide free, confidential, one-on-one support to anyone affected by cancer— whether you have cancer or are a loved one, friend, health care professional or caregiver of someone diagnosed.
• Neuro Exam: What to expect from a Neurological Exam.
• Preparing for your appointment: Questions to ask, things to expect, and other information.
• Friends of Treasure: is a 501(c)(3) Non-Profit Organization that provides financial assistance to children and their families suffering from rare diseases.

• CSF Info: Patient information on CM & SM

• CCI: Chiari Connection International - Articles, Doctor list, Patient Education lists, Support Group info, and more.
• Pre-Existing Condition Insurance Plan:The Pre-Existing Condition Insurance Plan makes health insurance available to people who have had a problem getting insurance due to a pre-existing condition.
• Posterior Fossa Decompression Illustration - Non-graphic illustration of Posterior Fossa Decompression surgery.

BOOKS

• Conquer Chiari: A Patient's Guide to the Chiari Malformation
  Rick Labuda
• The Chiari Book: A Guide for Patients, Families, and Health Care Providers
  Dr. John Oro
• Arnold-Chiari Malformation: A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References
  Icon Health Publications
• The Official Parent's Sourcebook on Chiari Malformation
  Icon Health Publications
• Chiari Malformation: Causes, Tests, and Treatments
  John Hewitt, M.A.
• It's All in Your Head
  Maria McCutchen

Member Personal Blogs

• Chiari-Life
• Chiari Carnival
• Chiari Surgery
• Day with Chiari
• Shalunya Boyet
• A Spark of Inspiration
• The Twitch Online
• Too Much Brain to Contain

Feel free to suggest any links you feel may be of help!

• How do I add a link to the Resources page?
  To add a link to the Resources page, please contact one of the moderators from the home page.

updated 02/2212