About Us

What is ChiariSupport.org?

ChiariSupport.org is a dedicated patient-to-patient support community for families affected by Chiari Malformation. ChiariSupport.org is powered by BensFriends.org, patient support communities for rare diseases, and is run by volunteer moderators who have been affected with Chiari Malformation.

Who can join ChiariSupport.org?

If your family has been affected by Chiari Malformation, consider ChiariSupport.org your second home. ChiariSupport.org, as well as the rest of BensFriends.org’s patient communities, is free for members to join.

What is Chiari Malformation?

Chiari Malformation is a rare disorder characterized by a malformation in the brain, particularly in the cerebellum, the part of the brain responsible for controlling balance. Symptoms range from headaches, nausea, and facial pain; to sleep apnea and impaired coordination.

You can learn more about Chiari Malformation at Wikipedia.

What is BensFriends.org?

In 2007, Ben Muñoz suffered a rare form of stroke caused by an AVM. He was unable to find the support he needed during the most difficult time, so he created an online support community AVMSurvivors.org to connect with others like him. AVMSurvivors.org led to the founding of BensFriends.org, driven to provide patient-to-patient support communities for people living with rare diseases.

BensFriends.org is a network of patient communities for people living with rare diseases. Launched in November 2007, BensFriends.org provides valuable patient support by creating and running compassionate, responsive communities. BensFriends.org maintains dozens of patient communities and has changed thousands of lives.

You can learn more about BensFriends.org at http://www.bensfriends.org or watch one of our
videos at http://www.youtube.com/BensFriendsVideos.