Chiari Malformation - Online Support Group
We are patients and survivors of Chiari (types I-IV), here for your support.

A forum to discuss what has worked for pre and post surgery and any issues related to Chiari pain.
Members: 33
Latest Activity: on Wednesday
Started by Carol M. Dexter. Last reply by Vonda Gardner Apr 10. 3 Replies 0 Likes
I LIVE IN THE PACIFIC NORTHWEST (MONTANA) AND NEED TO FIND A DOCTOR WHO UNDERSTANDS WHAT HE SEES ON THE MRIs. I HAD SURGERY IN MARCH, 2010 BUT SOME OF THE SYMPTOMS ARE BACK AND DESPERATELY NEED TO…Continue
Started by Susan J. Last reply by razzle51 Mar 28. 1 Reply 0 Likes
I am new to the pain management group. I am curious how many people take muscle relaxers and if so how far post op are you? Did they offer any relief? Which one?Continue
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Comment by Mrs. Grampus on Wednesday Mary I go to Dr. John Sampson at Duke university medical


Comment by Michelle on March 8, 2012 at 6:55pm Have any of you tried Nucynta? I just started it a month ago and it seems to be helping quite a bit. I still hurt, but it is so much better then it was with Percocet or Loratab. I also take a muscle relaxer at night before bed. I just am trying to plan for my surgery in 2 weeks and get things arranged now.

Thanks Renee!!!
I even had a Medical Attorney friend who said his clients have terrified him with Abalation stories.
Comment by Renee on February 26, 2012 at 12:40am 
I suffered with Chronic Pain since 7/10/2001 & have tried every pain medication with all possible combinations. Now I take Tramadol 100 mg & Klonipin 1 mg three times a day. Then 75mg amitriptyline & 100 mg of trazadone at night . I have used opiods , but chose to stop because they ruined my sleep patterns. Six weeks ago I had abalation on C3, C4 & C6. Abalation is where they use radiowaves that are 80 degrees, which is above boiling for radiowaves to burn the nerve endings and thus stop the pain signals. It was torture on already inflamed nerves. Please never even consider this. It's like being branded from the inside out. The worst part is it has pushed my recovery back to right after I had my CM Decompression surgery. It is very depressing. Having to feel like this again. Just please think long and hard before you have abalation therapy. The pain dr. wanted me to take Methodone & Percocet for breakthrough pain , but it made me so sick. He changed it to Morephine with percocet. My pain is much worse after the abalation & I never thought that would be possible.
Comment by Renee on February 8, 2012 at 5:34pm
Comment by sharon kenny on January 18, 2012 at 4:25pm my pains are so bad i feel like my brains exploding out of my head, then i go all weird in the head and the pressure pains down my back is like being in a pannini press. M neurosurgeon has give mt amitriptylene to take at night. they took the edge off my head but not my back, shoulders and now my headaches are getting bad in the day wish i could remove myself from this body.
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