PA Chiarians

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Moderator Comment by Alicia Roden on Friday

Hey Aveet! I'm from the Gettysburg area. I'm not sure if there are any in the Philly area.

 

The PA groups I've found are listed here:
http://www.chiarisupport.org/group/pachiarians/forum/topics/pa-supp...

Comment by aveet on April 24, 2012 at 9:21pm

Hello,  I"M from Philadelphia, South Philly.  I'm new to Chiari and wondering if there are any support groups in the Philadelphia area.  Thanks so much:)

Moderator Comment by Alicia Roden on April 9, 2012 at 8:27pm

Hey all! I started a discussion in the main forum about a walk in June from the Chiari & Syringomyelia Foundation.

http://www.chiarisupport.org/forum/topics/unite-night

Moderator Comment by Alicia Roden on January 15, 2012 at 3:25pm

I need your opinions. Read and comment with your head pain descriptions and how you handle it.

http://chiari-life.blogspot.com/2012/01/it-is-not-just-headache.html

Comment by Lilly on November 19, 2011 at 3:05pm

Awesome Alicia - Thanks so much! 

Moderator Comment by Alicia Roden on November 19, 2011 at 2:46pm

Welcome to the group IRISHegm & Liliy!
I'm Alicia:) I'm from Abbottstown, right in between Gettysburg & York.

Lilly there is a support group in lancaster. I belong to it but as its a little farther away from me I am unable to attend the meetings. It is called ChiariPeople of PA Renee Tobias started it. She is on my facebook page.

Click on "PA Support Groups" at the top and the information is listed in there for hers as well as others I found. If anyone else knows of any that are not listed please let me know:)

http://chiari-life.blogspot.com

Comment by Ross on November 14, 2011 at 7:23am

Hi Lillymaria, I live in HBG and no support groups in this area - many of the symptoms you experienced I also experienced and all in a matter of weeks/months - I have found to be beneficial is to try to figure out my triggers and avoid (obviously)- there are some really caring people on this site who have some good ideas - hate to say it but welcome to our little club!

Comment by mmpeanut on November 14, 2011 at 6:44am

Hi Lilymaria.  I am in Pittsburgh..not in your local area...but I am still here to support you, answer questions, bounce ideas, listen to you vent...and all that jazz.  Welcome to the community!  I hope you have a wonderful day.

Comment by Lilly on November 14, 2011 at 6:38am

Hello! I'm new here and so glad to find this site.  I'm live near Lancaster/Harrisburg area.  Are there any local support groups nearby?

Comment by IRISHegm on October 11, 2011 at 10:20pm

Hello everyone, am new to group and this site. So glad I found it.

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