Chiari Malformation - Online Support Group

We are patients and survivors of Chiari (types I-IV), here for your support.

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North Carolina Chiarians

Members: 12
Latest Activity: May 8

Discussion Forum

ASAP SUPPORT GROUP MEETING IN DURHAM

Started by ASAPNC Mar 16. 0 Replies

This Sunday March 18th  Dr. Gerry Grant will be speaking at Pomodoro's Restaurant in Durham on Hillandale Roadnear Duke Hospital at 5pm. He is a Duke Neurosurgeon.He will talk and answer questionsYou…Continue

What's going on?

Started by LaylaBleu. Last reply by LaylaBleu Jun 24, 2011. 2 Replies

My Chiari was found while looking at mri pictures which I had done because of a numb arm after falling in the shower, and Im wondering if the numbness was caused by the fall itself or did the fall…Continue

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Moderator
Comment by Abby on April 20, 2012 at 9:51am

Welcome All.

Comment by Mrs. Grampus on April 17, 2012 at 10:29pm
Hi, Christina! I live in Matthews! We're neighbors! My NS was Dr. John Sampson at Duke Medical in Durham. We do not have a Chiari specialist any closer. I email or call his nurse practitioner often. If you need a good primary doctor that knows allot about Chiari I see Dr. Bridges at Pine Lake Family Practice.
Comment by Christina Gould on April 17, 2012 at 6:15pm
I have a question for my fellow NC chiarians, I am looking for a neurosurgeon, who did you guys use?

Moderator
Comment by Abby on April 17, 2012 at 6:07pm
Welcome

Moderator
Comment by mary anderson on April 17, 2012 at 3:58pm
Hi Christina. Welcome to the NC group! We are all where u are and know what we have experienced and hopefully can help u along your journey! I had surgery in 03 but still have pain control issues esp on days like today when storms r headed this way. Ask anything u need to ask. Someone will try to answer. We of course don't have all the answers because there doesn't seem to be a lot of consistent answers out there but we can share our experiences n sometimes it helps just to know you r not alone!
Comment by Christina Gould on April 17, 2012 at 3:34pm

Hello to you guys.  I live in Weddington NC which is in Union county, just outside of Charlotte.  I just joined today and am looking for some help and support for people who understand what I am going thru.  Unless you are living it, with all of the crazy symptoms and ups and downs, it's hard to understand.


Moderator
Comment by mary anderson on August 15, 2011 at 8:28am
ok I livein Midway which is midway between here and nowhere! the largest city near me is Winston-Salem.
Comment by Dawn Purvis on August 15, 2011 at 7:14am
Mary - I live in Greenville NC

Moderator
Comment by mary anderson on August 15, 2011 at 7:08am

Dawn,

what area of NC arew u from if its ok to ask? your name sounds very familiar to me for some reason.  thanks,Mary

Comment by Mrs. Grampus on August 14, 2011 at 4:38pm
Chiari Education Group Support (CEGS)
Come join us as we discuss starting a group. I will have the agenda and some resources. I am inviting Chiarians, families, Primary care providers, Neurologist, Neurosurgeons, Psychologist, Counselors, Pharmacist, Holistic Doctors, Therapist, retailers, and any businesses interested in teaming up with the goal of educating and supporting.

Wendy's Restaurant
6018 East Independence Blvd, Char NC
Sept 21, 2011 at 11am - 12:30pm
 
 
 
 

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