Chiari Malformation - Online Support Group

We are patients and survivors of Chiari (types I-IV), here for your support.

I thought this would be a nice place to start a discussion about things that have helps us.  Whether it be Exercises or Herbs, Vitamins, Prescriptions, Good Doctors.... Bad Doctors - Anything that is in our area. 

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Bad Doctors - I would avoid Dr. Kaddurrah from Hurley, not to be mean.  He is a nice doctor and all, but he refused to think about my daughter's seizures as having anything to do with Chiari's.  we went to him for a year before he informed us that he has nothing to do with the Chiari's, he just treats the seizures (he is a neurologist) and we should have been seeing a neurosurgeon the whole time to track the Chiari's.  since he was the one to diagnose the chiari's, don't you think he should have said something before???

Good doctors - Dr. Udehn, Covanent Hospital, Saginaw.  Awesome.... I love him.  My daughter was so comfortable with him, she fell asleep during the exam, something that doesn't even happen during her regualr pediatrician visits, and she's had the same ped since birth.

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