Californian Chiarians

Comment

Comment by Sheila on April 5, 2012 at 11:00pm

Jenny, Congratulations for hosting the walk in Sac! Please let me know if I can help in any manner. I would also like to meet you and discuss our Chiari bond :)

Comment by Jenny Foulk on March 30, 2012 at 11:07am

Hey everyone! I will be hosting the first ever Nor Cal CCWAA here in Sacramento this September! I would love to meet anyone in the area and hope to have your support in the walk! Also, I don't know a single person with Chiari in "real life" so I hope to meet some of you Sacramento-area people!

http://www.conquerchiari.org/ccwaa/ccwaa-main.html

Comment by Sheila on March 25, 2012 at 10:13pm

I live in Redding but I was in Sacramento for few years. I travel back every month as my family still lives there. I would love to meet you and your daughter. I hope to be back in Sac in the next few weeks, let me know what works best for you. I was diagnosed in 2008 but have suffered for more than 25 years.

Comment by Megan's Mom on March 25, 2012 at 3:03pm

Is there anyone up in the Sacramento valley. My daughter is looking to meet more people who have Chiari.

Comment by Megan's Mom on February 23, 2012 at 2:33pm

I am up here in Sacramento. The NS that my daughter has is a very good NS. He is very good at what he does, he helps you understand what is going on.

Comment by hartnsoull on February 10, 2012 at 7:40pm

Hi.   Im from Hanford California.  Is there anyone remotely close to hanford?  Is fibromyalgia common diagnosis with any of you guys?

 

Comment by KIKO on January 29, 2012 at 9:40am

Hello all, I am new to the group and glad to found this sub-group. I live in San Gabriel Valley, would love to learn others in southern california on which NS you see.

Comment by Patty on July 10, 2011 at 12:42am

I am looking for a neurosurgeon Kaiser will allow me to go to.  I am willing to travel.  I got a referral to Sunset, but the NS they scheduled me with is not board certified so I told them to try again.  May have to opt for another insurance when open enrollment comes in Nov.  I will not see someone that is not qualified.

Comment by Jennifer Dorkin on April 26, 2011 at 11:26pm

UPDATE!  I was approved as the Southern California Rep for CCWAA and the walk will be held in September, in Irvine!  Please join us!  Tell everyone you know, get people to sponsor you!  Use it as a chance to raise awareness with your friends, family and acquaintances.  Come walk with us, volunteer if you can, donate or ask others to donate to this awesome cause that supports patient education and research into Conquering Chiari!

 

Click below to register today!

 

https://www.conquerchiari.org/ccwaa11/ccwaa_register.asp

Comment by Jennifer Dorkin on February 19, 2011 at 1:30am

Hello!  Where in California do all of you live?  I am in Orange County.  I am interested in organizing a Conquering Chiari Walk Across America here in Southern California this year.  I have also been trying to get a local meet-up going for people in our area with Chiari.  If you are interested in helping with either one, please let me know! :)

 

If you are on facebook... http://www.facebook.com/group.php?gid=20967018744