What is the dumbest thing you have been told about Chiari? We all need a good laugh now and then:)

I visited the Chiari Connection International website and read the page titled "The Lighter side of things." They had a list of the top 10 dumb things said to Chiarians. We have all been told some pretty dumb things, whether it be from friends, family, or doctors. So...I'm bringing this discussion here so we can all get a good laugh about some of the dumb things we have been told.

For example...My sister told me that if I wouldn't frown, my head wouldn't hurt. If only it were that easy. I'm frowning BECAUSE my head hurts.

At the time, these comments can be hurtful and frustrating. But, sometimes you just have to look back at their ignorance and laugh. Please share some of your stories.

Crystal

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ModeratorPermalink Reply by TracyZ on March 31, 2012 at 12:04pm

sorry I answered twice.....

TracyZ said:

An ENT told me I needed to see a psychiatrist & suggested an Inpatient stay might be needed.(My NS wrote the ENT a letter explaining CM & Geniculate Neuralgia ) That there was nothing wrong with me. The strangest thing that has ever happened to me was.....I went to see an 80 year old Chiropractor that went into a trance and "Channeled" dead surgeons that supposedly did psychic surgery on me. In all reality he did a cranial sacrial (SP) and I almost died......I had no idea what he was going to do, I wasn't even diagnosed yet. My daughter was in the room with me and she was about to die laughing.. He was playing american indian chants.....very different .....indeed !!!!

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ModeratorPermalink Reply by Twitch (Adam) on March 31, 2012 at 1:49pm

A couple of months ago, my neurologist told me that all of my Chiari symptoms could be explained by either high...or low...blood sugar Ugh.

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Permalink Reply by mbrantl on March 31, 2012 at 8:02pm

I was referred to a NL because of trigeminal neuralgia, migraines, and dizziness. My migraines use to come and go and one day they came and stayed for over two months straight. The NL reviewed my MRI and drew a cartoon picture of the Chiari and said it wasn't symptomatic? He then wanted to put me on Topamax for the migraines. I asked him what part of my symptoms were not symptomatic?

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ModeratorPermalink Reply by Crystal on March 31, 2012 at 10:44pm

TracyZ- He channeled dead surgeons...seriously?! And...you're the one that needs to be locked up?! Wow...I think that just may be the craziest thing I've heard yet!

Twitch- All of your symptoms are caused by high or low blood sugar?! That makes sense...NOT! I hope you have a better NL now.

Mbrantl- Exactly! If we're not symptomatic, then why do we have all these symptoms?! I hope you found a better NL.