step by step guide

Browsing some web site of the doctors that Abby posted from the WACMA and their research. I found this on the link for Dr. Bejjani.

The link is http://www.neurosurgery-web.com/Opening%20Page.htm.

On the left side when you open the page, scroll down to neurohydrodynamics, underneath you will see a link for Chiari Malformation. Click that several more links appear and one I found interesting that I have not seen is how the surgery is performed (Illustrated and step by step).

It is in simple language and easy to understand with the illustration (my opinion).

Let me know what you guys and gals think

Mike

0 members like this

▶ Reply to This

Replies to This Discussion

ModeratorPermalink Reply by TracyZ on February 21, 2012 at 10:01pm

Thanks Michael !!!

How are you & your wife doing ?????

Hoping You All are Great,

Tracy Z.

▶ Reply

ModeratorPermalink Reply by TracyZ on February 21, 2012 at 10:06pm

That is really great to see by steps. Thank you so much !!!

You Rock My Friend,

Tracy Z.

▶ Reply

Permalink Reply by Michael Salasky on February 21, 2012 at 10:17pm

Tracy,

Bad past few days for both of us busy and we are both hurting. She is p and down as expected and my pain and patience are spread so thin I am wrong in totally flipping out but I just CAN NOT take it. Wanting to take a very long walk but due to being where I am there are no VERY SHORT PIERS. So I am cleaning and that will make symptoms worse and so the cycle continues. GRRRR maybe after a few days I will just sleep for 18 or so hours and return to a "normal Chiari" state. You know SNAFU because the last days as said have been FUBAR

▶ Reply

Permalink Reply by Michael Salasky on February 21, 2012 at 10:34pm

Katie,

If you remember the link for that article please send it to me. As for this it is mostly a step by step guide o the surgery and the other stuff we already know testing and Hans Chiari discovered, blah, blah, blah.

I hope thinks are better for you today. You have been on my mind lately and in my prayers. I just couldn't think of anything comforting to day to you; SORRY :(.

▶ Reply

ModeratorPermalink Reply by TracyZ on February 21, 2012 at 10:50pm

Michael- I hope and pray you get some rest. Today has been a high pain day for me & I understand feeling like you have a short fuse. I too have been looking for a short pier. Stress and pain stinks !! All we can do is hope tomorrow better.

Katie- I would NEVER have this surgery again, NEVER.....Research as well as all healthcare follows the money. CM is a Rare Disorder. My cousin has Scleroderma, also a rare disorder. It makes your organs harden. It's horrible, but she is in the same situation we are. I have had to tell people their illness isn't covered because their NS is out of network. It doesn't matter if that NS has done 1000 CM surgeries. They have to go to someone participating to get the insurer or Co., if self insured, to pay the claims. It's very sad.

Tracy Z.

▶ Reply

ModeratorPermalink Reply by Destini on February 22, 2012 at 3:14am

thank you mike

▶ Reply

Permalink Reply by Bill Zern on February 22, 2012 at 3:56am

hey Michael,

Great find! I'm pretty sure that this procedure is outdated (by about 5 years). That's not to say that some neurosurgeons aren't still performing this exact procedure still unfortunately. At my surgical consultation I was told I wouldn't even need a duraplasty because the incision would be so small. A lot of research has been done and is still being done, a lot of which can be viewed over at ConquerChiari.com under the conferences sections.

▶ Reply

ModeratorPermalink Reply by Alicia Roden on February 22, 2012 at 7:38am

Thanks Michael!

Maybe its me but I clicked the link and I don't see "neurohydrodynamics, underneath you will see a link for Chiari Malformation" any of that. lol Help!

▶ Reply

ModeratorPermalink Reply by Abby on February 22, 2012 at 8:22am

Love the Seredip website

Katie Gleaves said:

I think it's great we all found each other because we all know exactly what the other is going through and we all add each other to our much needed prayer lists. The mere knowledge makes a difference. I've been hurting since the ns did the packing of my wound yesterday. Left there hurting and in tears. Also pissed off because he didn't think there was need for a culture until next week. Even though he told us not to fully pack it so it could shrink, it isn't shrinking it's actually getting drastically larger and the gauze is coming back out green and oozy. So calling tomorrow am and demanding action. I'm sorry but if the three fluid tests done the week of the 18th of Jan came back clean and now there is infection showing ? Hello I do not in anyway believe that it's the original staph.

http://www.writing.com/main/view_item/item_id/1504626-ACM-and-Decom...

http://serendip.brynmawr.edu/exchange/node/1818
http://www.cornellneurosurgery.org/chiari/surgery_for_chiari.html

These are the three studies I read today

Michael Salasky said:
Katie,

If you remember the link for that article please send it to me. As for this it is mostly a step by step guide o the surgery and the other stuff we already know testing and Hans Chiari discovered, blah, blah, blah.

I hope thinks are better for you today. You have been on my mind lately and in my prayers. I just couldn't think of anything comforting to day to you; SORRY :(.