recommended listings of Chiari Doctors

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Permalink Reply by JanetKP on February 19, 2012 at 9:02pm

Abby, please add an asterisk to Dr. Tew, Cincinnati. He is also my doctor and is very highly regarded by his patients - and me.

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Permalink Reply by Michael Salasky on February 20, 2012 at 12:46am

Thanks for the list Abby.  It will help me advance my search, even though there are some docs on it that are adding to my confusion.  I am glad others had success with them even though I did not at this time.  Maybe after more testing, I will get positive results from those docs.

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ModeratorPermalink Reply by Abby on February 20, 2012 at 10:02am

Janet, Thank you for letting us know that.  Hope your doing well and have a great doctor looking after you.  Take care.

JanetKP said:

Abby, please add an asterisk to Dr. Tew, Cincinnati. He is also my doctor and is very highly regarded by his patients - and me.

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ModeratorPermalink Reply by Abby on February 20, 2012 at 10:04am

Michael, This list was put together and by WACMA, and their research.  Know what you mean, there are so many it is hard to determine which one to choose.  Wonderful news when someone finds a good doctor.  They are few and far between.

Hope your doing well.  Take care of yourself and good to hear from you.

Abby
Michael Salasky said:

Thanks for the list Abby.  It will help me advance my search, even though there are some docs on it that are adding to my confusion.  I am glad others had success with them even though I did not at this time.  Maybe after more testing, I will get positive results from those docs.

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Permalink Reply by NeoGeoH on February 20, 2012 at 10:23am

Dr. Violette Recinos at the Cleveland Clinic's main campus.

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Permalink Reply by Michael Salasky on February 21, 2012 at 9:32pm

Abby,

I am adding a link.  On the left side when you open the page, scroll down to neurohydrodynamics, underneath you will see a link for Chiari Malformation. Click that several more links appear and one I found interesting that I have not seen is how the surgery is performed (Illustrated and step by step).

The links is http://www.neurosurgery-web.com/Opening%20Page.htm.

I believe its validity due to finding it on a page that has Dr. Bejjani. 

Mike

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Permalink Reply by misallen on February 23, 2012 at 4:19pm

Abby,

Please add Dr. Ali Krisht in Little Rock, AR.  He is such an amazingly wonderful surgeon!!!!

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Permalink Reply by Kenny Who-dat Flaming on February 23, 2012 at 4:40pm

Dr. Marcus Ware at Ochsner Hospital in New Orleans has been great for me!

Marcus L. Ware, M.D., Ph.D.

Medical Director for Neurosurgical Oncology

Department of Neurosurgery

Ochsner Medical Center

1514 Jefferson Highway, New Orleans, LA 70121

(504) 842-4033 phone

(504) 842-6531 fax

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Permalink Reply by Amanda Heath on February 27, 2012 at 11:05pm

If anyone is in the Augusta, Ga area. John Vender with Georgia Health Science University is a great neurosurgeon for Chiari. The hospital was formally Medical College of Georgia(MCG) since the name just changed not many know Georgia Health Science University. But he is great and gets to the chase!

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Permalink Reply by razzle51 on February 28, 2012 at 8:50am

this is a old list and some of these drs are not practiceing anymore or have retired FYI

But thanks for the new names

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Permalink Reply by Olive's Mom on March 2, 2012 at 10:41pm

I agree Janet.  Dr. Tew did my daughter's decompression June 2010.  While she still has some headaches and the year post surgery was challenging due to her brain adjusting to the decompression Dr. Tew changed her life for the best.  We will forever be indebted to him and his team. We did research and found that Dr. Tew is respected among doctors and nurses too.

JanetKP said:

Abby, please add an asterisk to Dr. Tew, Cincinnati. He is also my doctor and is very highly regarded by his patients - and me.

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Permalink Reply by nicolee on March 7, 2012 at 5:29am

I recently read a very informative article about Dr. Bejjani.  He said that he deals with the Chiari and decompression surgery, but after surgery, refers his patients to pain management.  I know we all deal with this, but does anyone know what doctors DO deal with all the Chiari related symptoms after surgery?  My PCP is wonderful, but she feels that I should be seeing a NL for the issues.  My NL is a joke and my NS says she did her job.  It is so frustrating.  I have an appt in April with a new NL, but almost feel like not going.  I don't know if he even deals with this issue.  

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