Chiari Malformation - Online Support Group

We are patients and survivors of Chiari (types I-IV), here for your support.

I noticed that a few of us have personal blogs on chiari (maybe more of us that I know.)
So I thought maybe we could put a section in the resources for personal blogs. If you'd like to submit yours post the link in this discussion.

 

 

http://chiari-life.blogspot.com

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Thanks, I'm going to check your site out when I get home from work. As for the great writer part, tell that to my English teacher a few years back!

Twitch said:

Started following both of your blogs, Steve and Josh.  You both are really great writers.  I've noticed that from the majority of the Chiari blogs that I've read.  You know, maybe this disorder gives us a way with words.  LOL.

I finally have started a Facebook page for my website.  It's at www.facebook.com/readthetwitch.  Seems like I lived on Facebook yesterday.  Spent hours creating pages and groups.  Maybe I should take some of that time and focus on my site.

I should probably throw this out there:  My site is likely NSFW.  I tend to curse.  A lot.  I have also, on occasion, posted a photo or two that you may not want to pull up on a work computer.

Just sayin'.

Ok I'll add that next to your link:)

Hey chiari-ans, I started a blog about my life and my journey to diagnosis. I do swear often, so keep that in mind if things like that offend you, and it's a tumblr, meaning it's a multimedia blog and is not just text based. Feel free to check it out!

http://dailylifewithchronicillness.tumblr.com/

Here is mine... http://mylifeasachiarian.blogspot.com/ I just started it, so I am slowly getting it up and running.

I have a blog but am not the best at doing it every day....actually pretty sucky at it..I am trying to get better at it cause it seems to help get everything out. http://christinemullen.blogspot.com/

YAY CURSING!!!  LOL

Love the Tina Fey GIF.  Hilarious.

And Happy Birthday.  :)

Lissa said:

Hey chiari-ans, I started a blog about my life and my journey to diagnosis. I do swear often, so keep that in mind if things like that offend you, and it's a tumblr, meaning it's a multimedia blog and is not just text based. Feel free to check it out!

http://dailylifewithchronicillness.tumblr.com/

Thanks Twitch!!!

Twitch said:

YAY CURSING!!!  LOL

Love the Tina Fey GIF.  Hilarious.

And Happy Birthday.  :)

Lissa said:

Hey chiari-ans, I started a blog about my life and my journey to diagnosis. I do swear often, so keep that in mind if things like that offend you, and it's a tumblr, meaning it's a multimedia blog and is not just text based. Feel free to check it out!

http://dailylifewithchronicillness.tumblr.com/

Updated the resourcs with all the new blogs! Thanks everyone:)

Our Chiari Blog Carnival has been added to the support page on the conquerchiari website http://www.conquerchiari.org/support/resources.html. It's great to see that an idea born here is continuing to make a further impact on the chiari community.  

If anyone is interested in contributing to the March blog carnival I haven't yet published it and would love to add your submissions. 

That's great!!

I'm emailing you my blog now:)

I have a blog and a website to see my kitties :-).

My blog is

http://homeschoolblogger.com/inchristalone/

and my kitties can be seen here:

www.angelicurls.com

Bethany

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