Chiari Malformation - Online Support Group

We are patients and survivors of Chiari (types I-IV), here for your support.

I was wondering if anyone else has been dx with chronic migraines? My ns said my Chiari 4mm according to my mri was not blocking flow enough to be causing me the pain n symptoms I've been having n is sending me to the nl for chronic migraines. Have any of you discovered it isn't the Chiari causing your symptoms? If so what is it? I'm to the point I don't care what it is I just want it fixed! A brief list of symptoms include...severe pressure in my neck and neck is causing me the most pain, twitching in random parts of my body, numbness in my arms, stuttering, loss of words, confusion, swishing sound in my ears, ringing, sound is intensified, light as well, pain in my legs sometimes, feeling like I'm literally on fire, sounds strange I know!, night sweats, blood pressure is all over and it's usually perfect, If I do feel good and do some work I pay for it as all my symptoms come back with a vengeance! There's more but I think u all get the pic lol I'm like so many of u with dx of anxiety, depression, and it's just not me, I was a happy, very energetic and independent person.
I've heard there are other things tht can cause these symptoms and would like any info that I could tell my nl? I cant afford tests after tests to find nothing, I've had MRI of my brain, neck, and upper back, can you all tell any tests tht you have found beneficial? Any help would be great! Also as for the migraines, I've had migraines but I just don't feel tht it's what is constantly causing me pain, am I wrong? Feel like I've lost it! You all are great!

Views: 126

Reply to This

Replies to This Discussion

Tht is absolutely true! It's too bad we don't have a few Drs in our group, I think that's the only way I'm gonna be taken seriously! It's nice to have ppl like u to talk to, helps me keep my sanity! I hope ur days are good ones! U r definitely in my prayers

Reply to Discussion

RSS

Please Like Us on Facebook and Follow ChiariSupport and Ben's Friends

To Support ChiariSupport.org, Click an Ad. Or Two.

Advertise With Us

© 2012   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service