Chiari Malformation - Online Support Group
We are patients and survivors of Chiari (types I-IV), here for your support.
Chiari qualified Neuro dr. needed in Indiana
So far I have not been able to find a neurologist in my area (NE Indiana) who knows more than the cliff note version about chiari. Can anyone recommend a good one in either Indiana or Michigan? My neurologist here inspired no confidence whatsoever. She kept saying I must have a connective tissue disease as well as the chiari because my pain is not localized enough for chiari and I don't have "highly reactive nerves" when they tap my knees and elbows. Is that a definite requirement? lol
Does anyone else on here have pain that travels, or is it "supposed" to just stay in my neck? haha, I know the answer to that one already, because not one person has stated that their pain stays in one spot. I don't know about the nerve reaction, though. I cannot remember what she called it, either.
Tags: IL, Indiana, Michigan, OH, chiari, recommendation, specialist
Replies to This Discussion
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Permalink Reply by Sherry on -
Are you very far from Chicago. Dr Frim is an expert in Chiari surgery. Hope you get the help you need!
Sherry
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Permalink Reply by Tara Wallace on -
Dr. Tew in Cincinnati, Ohio is very very good. He done my surgery on Dec. 20th and everything went great. The nurses and staff at Univ. of Cincinnati hospital were superb.
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Permalink Reply by JanetKP on -
I second Tara. Dr. John Tew with the Mayfield Clinic in Cincinnati is my Chiari doctor. He listens and cares. My surgery will be in mid March, but I have every faith that Dr. Tew will perform the best surgery possible.
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Permalink Reply by shydrangea on -
LOL, how funny Janet, I am seeing him on March 29! I doubt you will be up to letting us all know how it went that quick post surgery, but I will be anxious to see how you did. Actually, I am seeing Dr. Kuntz, but they are in the same office. Are you having to travel a long ways? How bad are your symptoms? Are you progressive or have you been at the same level for awhile? Thank you so much for your input!
Shelley
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Permalink Reply by shydrangea on
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And thank you for all of your suggestions. I am very nervous about the first meeting with the NS; part of me wants him to say surgery is an option, part of me is terrified for him to say that. I almost rather deal with the symptoms at this point. I'm just scared. Funny thing is, not for myself, but for the state of my house and kids when I got back home! LOL
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