Chiari Malformation - Online Support Group

We are patients and survivors of Chiari (types I-IV), here for your support.

Forum Discussions (898)

Featured Discussions
Alicia Roden

Personal Blogs

I noticed that a few of us have personal blogs on chiari (maybe more of us that I know.) So I thought maybe we could put a section in the r…

Started by Alicia Roden in GeneralLatest Reply

lori

Poem I want to Share

Hi....I wanted to share this with you all. My 15 yr old ,Victoria had to write a paper on something that effected her profoundly. She ope…

Started by lori in GeneralLatest Reply

joelene hossack

what types of chiari, and what it means, infomation

What are Chiari malformations? Chiari malformations are defects in the cerebellum and the brainstem that cause increase in pressure in the…

Started by joelene hossack in GeneralLatest Reply

Discussions Replies Latest Activity
Diane John Jr Oliver

This is gross I know but I have to ask!

Ok so last night I went to bed nauseated and didn't sleep well but then I got up felt fine for about 30minutes and all the sudden I felt li…

Started by Diane John Jr Oliver in General

1 36 minutes ago
Reply by Michael Salasky
Michael Salasky

update from Hopkins :( & some major venting (thanks for listening it helps)

I am not going to criticize the doc too much.  As it was said in posts previously, if he does not believe you need surgery he won't recomme…

Started by Michael Salasky in General

6 41 minutes ago
Reply by Michael Salasky
Twitch

Music Thread

I have been listening to a lot of music lately.  Some has been encouraging me.  Some has been depressing me. I thought it would be interest…

Started by Twitch in General

14 3 hours ago
Reply by Lori D
Susan

Waiting Process

So I sent my daughters records and MRI images to one of the top pediatric places in ohio. I'm still waiting for a reply from them. Crossing…

Started by Susan in General

4 4 hours ago
Reply by Susan
Crystal

What is the dumbest thing you have been told about Chiari? We all need a good laugh now and then:)

I visited the Chiari Connection International website and read the page titled "The Lighter side of things." They had a list of the top 10…

Started by Crystal in General

15 4 hours ago
Reply by Crystal
Diane John Jr Oliver

Chronic migraines?

I was wondering if anyone else has been dx with chronic migraines? My ns said my Chiari 4mm according to my mri was not blocking flow enoug…

Started by Diane John Jr Oliver in General

13 4 hours ago
Reply by Diane John Jr Oliver
roxanne28

Anyone else been like this after surgery

I was told that this surgery would help me but had my surgery in October 2011. Been told that I should not be still in pain in but I am. St…

Started by roxanne28 in General

2 11 hours ago
Reply by Bill Zern
Katie Gleaves

Sorry for all the time between posts

I was just about to have surgery last time I posted. Surgery was set and preformed on December 13 2011. I had very little intake flow and a…

Started by Katie Gleaves in General

3 12 hours ago
Reply by Twitch
Bill Zern

Worst panic attack of my life

I really didn't know they could get as bad as it was last night. I had just taken a little bit of xanax, next thing I knew, I was pacing…

Started by Bill Zern in General

13 yesterday
Reply by Laura
EmbraceLife

Is it common to have Chiari AND other health issues? Isn't Chiari alone enough?

Our son has the diagnosis of chiari malformation but has had a myriad of testing done and they are now considering additional neurological…

Started by EmbraceLife in General

6 yesterday
Reply by Twitch

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