Upcoming Events (12)

Decompression Surgery

May 29, 2012 all day – Duke University Hospital I had a date of July 10th but it has since been moved up, due to increasing sickness, tremors and now loss of temperature sensation on tongue and lips :( Organized by Christina Gould | Type: surgery
Sean's Surgery

May 29, 2012 all day – Cohen's Childrens Hospital Posterior Decompression, C1 Laminectomy, Duraplasty Organized by chiarimom | Type: surgery
JULIE'S SURGERY

May 29, 2012 from 6am to 11am – FAIRVIEW SOUTHDALE HOSPITAL Posterior Decompression, C1 Laminectomy, Duraplasty Organized by teamlasota | Type: surgery

Maryland North Beach Chiari Syringomyelia Foundation Unite@night Walk

June 9, 2012 from 6pm to 8:30pm – North Beach Maryland One-mile casual walk on the Boardwalk to raise money for the Chiari syringomyelia Foundation for awareness, research, and training. Check in at the Pavilion tent starting at 6:00 PM. Walk begins at… Organized by Shirley C. | Type: one-mile, walk, on, the, boardwalk

Jen's Decompression Surgery

June 12, 2012 all day – Methodist Hospital I will be having sub occipital craniectomy w/ duraplasty and C-1 and c-2 Laminectomy Organized by jencooper0217 | Type: surgery

Chiari Surgery

June 18, 2012 all day – Henry Ford Hospital Not sure of the time since they call the day before. Can't say I'm "excited" about this but I'm praying that this surgery will hellp control the symptoms and issues I have. Organized by Kajosmom | Type: decompression, surgery

Crystal's Decompression Surgery

June 28, 2012 all day – Harborview Medical Center My surgery is scheduled on June 28th with Dr. Ellenbogen. Organized by Crystal | Type: surgery

Ride For Brighid

July 7, 2012 from 8am to 7pm – Stafford Virginia On July 7, 2012 there will be a ride sponsored by Stafford Brothers In Christ. Brighid is a 9 year old little girl who had decompression surgery last summer and who's family needs some assistance pa… Organized by Stafford Brothers In Christ | Type: motorcycle, ride, fundraiser

American Syringomyelia and Chiari Alliance Project (ASAP) National Conference

July 18, 2012 at 6pm to July 21, 2012 at 7pm – Arlington Virginia ASAP will host its national conference in Washington DC and it is open to all. Learn about the latest research, treatments, and almost everything having to do with cm/sm and related disorders. Pres… Organized by ASAP | Type: education, awareness

Ride For Information

September 8, 2012 from 8am to 7pm – Fredericksburg, Virginia Stafford Brothers In Christ is sponsoring a ride, breakfast, and BBQ to raise money to build a library for information for Chiari. These libraries will contain Books, Pamplets, and any information a… Organized by Stafford Brothers In Christ | Type: charity, ride