Since site content and usernames are google searchable, please protect your anonymity by creating a unique username.
To change your username, click here.
All of the material provided on this site is for informational purposes only and is not a substitute for professional medical advice or treatment.
Always seek the advice of your physician or qualified health provider with any questions regarding your health.
Do not disregard professional medical advice or delay seeking it because of something you read on this site.
Thanks for your cooperation.
Chiari malformation, is usually present at birth and occurs at the back of the head where the brain and spinal cord connect.
There are four types of Chiari malformations:
Children with Chiari I malformations may start to have symptoms as early as age 2 or 3. Some don't have any symptoms until they are older. Symptoms can appear any time. They may start or get worse after a trauma, physical effort or straining, such as exercising, coughing or sneezing.
Syringomyelia, common with Chiari, is a cyst in the center of the spinal cord that is filled with fluid. The cyst, also called a syrinx, can get larger and longer over time, putting pressure on the spinal cord and causing symptoms. If not treated, it may also eventually cause nerve damage.
Read more here about living and coping with CM.
I have a problem driving in a car. My constant headache severely increases when riding in a carI only leave the house for doctor appointments. Does anyone have the same symptom?How do you prevent the pain? I have CM1 with 6mm and syrinx at T-3.I…Continue
I have Dysphagia and was wondering how many of you have it? I also use cough drops to help me swallow when I have trouble. It's usually after I eat, but sometimes I wake up having trouble swallowing. Anyone use cough drops or hard candy for it?…Continue
I can't find anything on this; but I'd really like to know.I've mentioned in posts about this before- but I was diagnosed with meningitis about a week and a half ago.I was in the ER the first 12 hours waiting for a room, and once I got in one they…Continue
This will be my 5th surgery. I will be having another shunt put in I am scared. Because I had this done before and it didn't work and had to be removed I got meningitis had a CFS leak and I am afraid I will go threw this again. Has anyone been threw…Continue
Hello, all!I'm relatively new to this website and have never signed up for a forum before, butI would just like to share with everyone my personal experiences with having a Chiari Malformation, along with my decompression surgery experience. Some of…Continue
Hi Guys, I am relatively new to both this group and Chiari, well the idea of it. I have been surring the heaches and odd syptoms for about 10 yrs and no one could figure them out or offer me anything that helped at all. A few months ago my…Continue
Just curious if anyone has any input for me? I went in for a CT scan back in 2012 because I was having some neurological symptoms, a burning and stinging sensation in the back of my head and neck and burning and stinging down my spine, vertigo. The…Continue
Blogs are for tracking your personal journey and sharing your reflections, humor, or insights with the community. If you have questions about Chiari, living with Chiari, treating Chiari or anything else and would like responses, PLEASE start a thread in Discussions, as your question will be seen by more people and receive more answers.
Blogs are for tracking your personal journey and sharing your reflections, humor, or insights with the community. If you have questions about Chiari, living with Chiari, treating Chiari or anything else and would like responses, PLEASE…Continue
Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now.
Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.
Posted by hope24 on May 17, 2015
Posted by Sabrina Haller Yeager on May 22, 2015
Posted by gilly on May 19, 2015
Posted by Debra Mann Davis on May 22, 2015
Posted by Lauren on May 20, 2015
Posted by stingerbabe on May 21, 2015