Welcome! You're not alone.
If your family has been affected by Chiari, consider Chiari Support your second home.
Got some QUESTIONS?
Check our FAQ PAGE.
Read More from our First-Time-User Guide.
First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.
All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
Arnold–Chiari Malformation, or often simply known as Chiari Malformation, is a malformation of the brain. Chiari malformation consists of a downward displacement of the cerebellar tonsils through the foramen magnum (the opening at the base of the skull), sometimes causing non-communicating hydrocephalus as a result of obstruction of cerebrospinal fluid (CSF) outflow. The cerebrospinal fluid outflow is caused by phase difference in outflow and influx of blood in the vasculature of the brain. Person with Chiari Malformation often experienced headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, impaired coordination, and, in severe cases, paralysis.
Read more from this link.
Hello everyone. I know it's been a while. I chose to have my decompression surgery with Dr. Heffez on June 23. I did not have a fusion as he did not see that it was necessary at this time. He thought that it would complicate things quite a bit. I…Continue
Hi GuysWent to see a Neurologist as my last scan showed my hernia had increased from 4.5mm to 5.5mm, he done the neurological exam and said that I had trouble following his finger with my eyes and that eye movements were a bit jerky. He said I do…Continue
I just found out that the doctor that I have been waiting for over four months is no longer affiliated with the hospital that I want to have surgery at. If I choose to stay with the surgeon that I like, it will force me to have surgery at a run down…Continue
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Posted by Cole on July 21, 2014
Posted by MJE on July 25, 2014
Posted by Worried Mom on July 22, 2014
Posted by DannieRae on July 22, 2014
Posted by TexasMom1977 on July 19, 2014
Thanks for your cooperation.
Welcome to ChiariSupport.org. We're glad you found our Community site. The purpose of this community is for people affected by a Chiari Malformation (types I-IV) to provide each other with emotional support. We are patients helping patients. We also have some parents/family members of those who suffer from Chiari Malformation.
What can you do on ChiariSupport.org?
1. Share your story on "My Page".
2. Start a new discussion on "Forum" and "Discussions".
3. Welcome new members with a comment on their page Welcoming Them To the group.
4. Share your photos/videos that inspire you or help you cope with living with Chiari Malformation.
5. Comment on other discussions and get to know your fellow members, make friends and get the support that WE ALL need.