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What is Chiari Malformation?

Chiari malformation, is usually present at birth and occurs at the back of the head where the brain and spinal cord connect.

There are four types of Chiari malformations:

  • Type 1 – occurs when the base of the skull and upper spinal area do not form properly. A type 1 Chiari malformation commonly goes unnoticed until problems arise in the adolescent or adult years of life. The headaches most typical of Chiari I malformations are usually located at the back of the head, and are often made worse by exertion.
     
  • Type 2 – sometimes known as an Arnold-Chiari malformation, a type 2 Chiari malformation is caused by part of the back of the brain shifting downward through the bottom of the skull. it is seen in infants who are born with spina bifida and can also be associated with hydrocephalus, a condition in which there is an overproduction or lack of absorption of the cerebral spinal fluid (CSF).
  • Type 3 – occurs when the back of the brain protrudes out of an opening in the back of the skull area.
     
  • Type 4 – occur when the back of the brain fails to develop normally.

Children with Chiari I malformations may start to have symptoms as early as age 2 or 3. Some don't have any symptoms until they are older. Symptoms can appear any time. They may start or get worse after a trauma, physical effort or straining, such as exercising, coughing or sneezing.

Syringomyelia, common with Chiari, is a cyst in the center of the spinal cord that is filled with fluid. The cyst, also called a syrinx, can get larger and longer over time, putting pressure on the spinal cord and causing symptoms. If not treated, it may also eventually cause nerve damage.

Read more here about living and coping with CM. 

Forum

Neurontin and Stomach Problems

Started by kwiatkat in Symptoms. Last reply by Dance mom 10 hours ago. 4 Replies

Hello,I am just wondering if anyone else takes Neurontin and has stomach problems? I have been having terrible bloating, pain, constipation and dirrehea for almost a year now. I have taken IBS meds which do not help and acid reflux meds. Recently my…Continue

Having my second appt with the NS after my diagnosis in February not sure what other questions I should ask

Started by Dance mom in Surgery and Recovery 10 hours ago. 0 Replies

Hi, just looking for advice on any questions I should ask when I have next appt in a few weeks? I don't feel like my 1st appt went well all he told me was yah you need surgery but I won't do it until you lose weight. I was so angry with him bc I…Continue

Managing fear

Started by Lauren in Surgery and Recovery. Last reply by Jules G 15 hours ago. 9 Replies

Any tips on how to manage the fear of upcoming surgery?

Chiari patient in Michigan - Dr. Gilmer at Beaumont

Started by TeacherWithChiari in Surgery and Recovery. Last reply by TeacherWithChiari 19 hours ago. 2 Replies

Just curious if anybody on here has had Chiari surgery from Dr. Gilmer at Beaumont hospital in Royal Oak, MI.  I went to see her last summer for the first time, and she seemed to think that chiari surgery would really help me and that it would…Continue

Tags: Gilmer, Beaumont, Michigan

Post op and still struggling.....

Started by sssnov76 in Surgery and Recovery. Last reply by TeacherWithChiari 19 hours ago. 2 Replies

Hi all,I am 11 months post op and I still have nearly every symptom that I had before surgery.  Fatigue, numbness of arms and legs, headaches.I get through each day by taking alka seltzer cold and flu tablets twice a day.  For whatever reason, they…Continue

Seeking information

Started by Heather in Parents and Caretakers of Children with Chiari. Last reply by v yesterday. 10 Replies

My 6 year old son was just diagnosed with chiari malformation last month. They found it in a ct scan because he had been running fever, blurred vision, and a severe headache sfor two weeks after he was hit in the head by our front door while playing…Continue

How to be a pushy patient: Want the best care? Here's how to fight your corner -

Started by Jules G in General yesterday. 0 Replies

This Article makes particular reference to the UK health care system, however, some of the advice maybe just as valid in other health care systems to empower patients to get the best possible care: Don't like to bother your GP? Feel they must have…Continue

Tags: Second, Opinion, Care, Patient, NHS

Condition worsens

Started by Brian's mom in Parents and Caretakers of Children with Chiari. Last reply by Brian's mom yesterday. 6 Replies

My sons condition has gone downhill in last 2 days. He was supposed to have MRI tomorrow, but driving to ER now. Has had severe dizziness, neck pain, migraine & feels like someone's standing on his neck. Also buzzing like a fly in his ears. No…Continue

Latest Activity

Brian's mom left a comment for v
"Hi Vanessa. Thanks so much for your comment. It helps me tremendously to feel I'm not alone in…"
8 hours ago
Dance mom replied to kwiatkat's discussion Neurontin and Stomach Problems
"Hi I was diagnosed in feb and have used neurontin for about a month now, slowly increase my mg.…"
10 hours ago
Dance mom posted a discussion

Having my second appt with the NS after my diagnosis in February not sure what other questions I should ask

Hi, just looking for advice on any questions I should ask when I have next appt in a few weeks? I…See More
10 hours ago
AmandasGotBrains13 posted a status
"Hi everyone! I just joined. I'd love to meet some people from my area around my age that I could chat with and eventually be friends with!"
11 hours ago

Moderator
Jules G replied to Lauren's discussion Managing fear
"Glad to hear you're prepared Yvonne, wishing you well for Wednesday and look foward to hearing…"
15 hours ago
Yvonne Strawberri Jones replied to Lauren's discussion Managing fear
"My surgery is on Wednesday and the thing that's keeping my mind at ease is knowing I'm…"
16 hours ago
TeacherWithChiari replied to TeacherWithChiari's discussion Chiari patient in Michigan - Dr. Gilmer at Beaumont
" Jules, Thanks so much for the information.  It is much appreciated! "
19 hours ago

Moderator
Jules G replied to TeacherWithChiari's discussion Chiari patient in Michigan - Dr. Gilmer at Beaumont
"Hello teacherwithchiari, welcome to our community.  I just ran a search on the site for Dr…"
19 hours ago

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Top Content 

1 Seeking information

Seeking information

Posted by Heather on July 1, 2015

2 Managing fear

Managing fear

Posted by Lauren on June 22, 2015

3 Condition worsens

Condition worsens

Posted by Brian's mom on June 30, 2015

4 Hi We're here

Hi We're here

Posted by JBs Momma on June 25, 2015

5 I know something is wrong with my son still but his NS says NO.....

I know something is wrong with my son still but his NS says NO.....

Posted by Nina on July 3, 2015

6 If you could tell about your Chiari to people who don't understand it what would you say on paper?

If you could tell about your Chiari to people who don't understand it what would you say on paper?

Posted by Abby on February 21, 2011

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does he care

Posted by Andrea on July 5, 2015 at 11:03am 0 Comments

I get up everyday in some fashion of pain. Continue to do my daily routine as best as I can, but when I just can't seem to do it but when I ask him for help its like its the end of the world. All I ask I for is a little bit of help!

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