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If your family has been affected by Chiari, consider Chiari  Support your second home.

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Does Your Pain Have You Considering Suicide?

First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

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Disclaimer

All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

 

What is Chiari Malformation?

Arnold–Chiari Malformation, or often simply known as Chiari Malformation, is a malformation of the brain. Chiari malformation consists of a downward displacement of the cerebellar tonsils through the foramen magnum (the opening at the base of the skull), sometimes causing non-communicating hydrocephalus as a result of obstruction of cerebrospinal fluid (CSF) outflow. The cerebrospinal fluid outflow is caused by phase difference in outflow and influx of blood in the vasculature of the brain. Person with Chiari Malformation often experienced headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, impaired coordination, and, in severe cases, paralysis.

Read more from this link.

Forum

4 weeks post op, headache returned

Started by Ellswim in General 8 minutes ago. 0 Replies

Hello everyone. I know it's been a while. I chose to have my decompression surgery with Dr. Heffez on June 23. I did not have a fusion as he did not see that it was necessary at this time. He thought that it would complicate things quite a bit. I…Continue

Why is my Neurologist fobbing me off??!!

Started by Helen in General. Last reply by Helen 2 hours ago. 2 Replies

Hi GuysWent to see a Neurologist as my last scan showed my hernia had increased from 4.5mm to 5.5mm, he done the neurological  exam and said that I had trouble following his finger with my eyes and that eye movements were a bit jerky.  He said I do…Continue

I just wanna cry....

Started by Nykki in General 2 hours ago. 0 Replies

I just found out that the doctor that I have been waiting for over four months is no longer affiliated with the hospital that I want to have surgery at. If I choose to stay with the surgeon that I like, it will force me to have surgery at a run down…Continue

limitations after decompression

Started by Sharon in General. Last reply by Abby 3 hours ago. 5 Replies

I forgot to ask. Do anyone know if there are any things we nit supposed to do after surgery? ( longterm)

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Latest Activity

Ellswim posted a discussion

4 weeks post op, headache returned

Hello everyone. I know it's been a while. I chose to have my decompression surgery with Dr. Heffez…See More
8 minutes ago
Helen replied to Helen's discussion Why is my Neurologist fobbing me off??!!
" "
2 hours ago
Nykki replied to Helen's discussion Why is my Neurologist fobbing me off??!!
"Hi Helen, You need to see a neurosugeon. They generally have more expertise in Chiari. Take…"
2 hours ago
Nykki posted a discussion

I just wanna cry....

I just found out that the doctor that I have been waiting for over four months is no longer…See More
2 hours ago
Helen posted a discussion

Why is my Neurologist fobing me off??!!

Hi GuysWent to see a Neurologist as my last scan showed my hernia had increased from 4.5mm to…See More
2 hours ago
abbydabby195 and Abby are now friends
3 hours ago

Moderator
Abby replied to Sharon's discussion limitations after decompression
"Your welcome Sharon, glad your here with us."
3 hours ago

Moderator
Abby replied to MJE's discussion Need to become familiar with Chiari
" "
3 hours ago

Top Content 

1 Back in the hospital...

Back in the hospital...

Posted by Cole on July 21, 2014

2 Need to become familiar with Chiari

Need to become familiar with Chiari

Posted by MJE on July 25, 2014

3 Newly diagnosed - looking for thoughts/opinions

Newly diagnosed - looking for thoughts/opinions

Posted by Worried Mom on July 22, 2014

4 Question about after surgery care

Question about after surgery care

Posted by DannieRae on July 22, 2014

5 Trouble With Sinus Pain?

Trouble With Sinus Pain?

Posted by TexasMom1977 on July 19, 2014

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What is ChiariSupport.org?

Welcome to ChiariSupport.org. We're glad you found our Community site. The purpose of this community is for people affected by a Chiari Malformation (types I-IV) to provide each other with emotional support.  We are patients helping patients.  We also have some parents/family members of those who suffer from Chiari Malformation.

What can you do on ChiariSupport.org?

1. Share your story on "My Page". 
2. Start a new discussion on "Forum" and "Discussions".
3. Welcome new members with a comment on their page Welcoming Them To the group.

4. Share your photos/videos that inspire you or help you cope with living with Chiari Malformation.

5. Comment on other discussions and get to know your fellow members, make friends and get the support that WE ALL need.

 
 
 

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Blog Posts

Numb

Posted by liaspyre31 on July 14, 2014 at 3:33am 5 Comments

I realized something yesterday evening when my hubby and I were heading to his DAV chapter for bingo, like we do most Sundays.

I've had intermittent numbness in parts of the right side of my body (neck, cheek, inside mouth, arm, shoulder,…

Continue

Just doesn't always seem to click

Posted by Jana on July 10, 2014 at 10:18pm 4 Comments

I have noticed that over the past couple of years my thought processing has become slow or garbled. Over the past 6 months or so it seems to have progressed rapidly. It's troubling to say the least.



I can't seem to keep track of things… Continue

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