Welcome! You're not alone.
If your family has been affected by Chiari, consider Chiari Support your second home.
Got some QUESTIONS?
Check our FAQ PAGE.
Read More from our First-Time-User Guide.
First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.
All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
Arnold–Chiari Malformation, or often simply known as Chiari Malformation, is a malformation of the brain. Chiari malformation consists of a downward displacement of the cerebellar tonsils through the foramen magnum (the opening at the base of the skull), sometimes causing non-communicating hydrocephalus as a result of obstruction of cerebrospinal fluid (CSF) outflow. The cerebrospinal fluid outflow is caused by phase difference in outflow and influx of blood in the vasculature of the brain. Person with Chiari Malformation often experienced headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, impaired coordination, and, in severe cases, paralysis.
Read more from this link.
The pain caused from my Chiari seems to be never ending. I have it as soon as I wake up in the morning until I go to bed at night. Sometimes I wake in the middle of the night with unbearable pain that just won't go away in my head and neck. I have…Continue
I know September is Chiari awareness month, but really why does my body feel like it has to remind me. This past month I have felt the worst I have felt in a long time. I've called in or had to leave work early at least 3 times this month already.…Continue
Hey everyone. It's been a while since I posted--just got bogged down navigating the gauntlet of tests, appointments, second opinions, BLAH. I had given up on my Chiari being any part of my symptoms (NO ONE out here was supporting that theory)…Continue
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Posted by Corrinart Paintings on September 11, 2014
Posted by Ogott on September 11, 2014
Posted by Ogott on September 12, 2014
Posted by brandi* on September 10, 2014
Posted by Ogott on September 12, 2014
Thanks for your cooperation.
Welcome to ChiariSupport.org. We're glad you found our Community site. The purpose of this community is for people affected by a Chiari Malformation (types I-IV) to provide each other with emotional support. We are patients helping patients. We also have some parents/family members of those who suffer from Chiari Malformation.
What can you do on ChiariSupport.org?
1. Share your story on "My Page".
2. Start a new discussion on "Forum" and "Discussions".
3. Welcome new members with a comment on their page Welcoming Them To the group.
4. Share your photos/videos that inspire you or help you cope with living with Chiari Malformation.
5. Comment on other discussions and get to know your fellow members, make friends and get the support that WE ALL need.