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If your family has been affected by Chiari, consider Chiari  Support your second home.


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Does Your Pain Have You Considering Suicide?

First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.


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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.


What is Chiari Malformation?

Arnold–Chiari Malformation, or often simply known as Chiari Malformation, is a malformation of the brain. Chiari malformation consists of a downward displacement of the cerebellar tonsils through the foramen magnum (the opening at the base of the skull), sometimes causing non-communicating hydrocephalus as a result of obstruction of cerebrospinal fluid (CSF) outflow. The cerebrospinal fluid outflow is caused by phase difference in outflow and influx of blood in the vasculature of the brain. Person with Chiari Malformation often experienced headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, impaired coordination, and, in severe cases, paralysis.

Read more from this link.


Newly diagnosed and have yet to meet with a Neurologist/Neurosurgeon...

Started by tkelly in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by tkelly 4 minutes ago. 13 Replies

I was just diagnosed with Chiari 1 Malformation last week and I just received the written results of my MRI but haven't met with a Neurosurgon or Neurologist yet, please help (if you can) interpret what it means.  My general doctor didn't seem to…Continue

Surgery scheduled and not sure what to expect after...

Started by tkelly in General. Last reply by tkelly 8 minutes ago. 7 Replies

I was diagnosed with CM this past November with a 10mm herniation. I finally met my NS on Jan 22.  When I initally spoke to him he said he would only suggest surgery about 50/50 until my husband reminded me to give him what my eye doctor asked me to…Continue

Arnold chiari

Started by Matt in General 25 minutes ago. 0 Replies

Hi all, me again, the Dr's have said that my 5 year old has Arnold Chiari Malformation, is there a difference between Type 1 and Arnold or are they both the same??

where are you all from?

Started by Cherie in General. Last reply by putty 3 hours ago. 5 Replies

Hiya all,Just a quickie, I was wandering where you are all from? I'm in the UK in the West Midlands but I know a lot of you are in the USA. From what you have read on here or experienced how does the care/knowledge of the condition differ depending…Continue

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Find out how you can better evaluate what option is best suited for your individual needs. Learn about the different types of health insurance and emerging trends in benefit design and affordability for individuals with rare diseases.

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Latest Activity

tkelly replied to tkelly's discussion Newly diagnosed and have yet to meet with a Neurologist/Neurosurgeon...
"Update Post-op:  I'm doing pretty good after surgery.  The only complication from…"
4 minutes ago
tkelly replied to tkelly's discussion Surgery scheduled and not sure what to expect after...
"Update Post-op:  I'm doing pretty good after surgery.  The only complication from…"
8 minutes ago
tkelly and CShinaberry are now friends
12 minutes ago
tkelly left a comment for PKTeacher
"Thank you for checking on me.  I'm doing pretty good after surgery.  The only…"
14 minutes ago
Matt posted a discussion

Arnold chiari

Hi all, me again, the Dr's have said that my 5 year old has Arnold Chiari Malformation, is there a…See More
25 minutes ago
putty replied to Cherie's discussion where are you all from?
"Central Coast ,Sydney,Australia.Doctors with Chiari knowledge are very,very few.Some good surgeons…"
3 hours ago
NieNie0326 replied to Unwritten's discussion Please share: What is the size of your herniation and most bothersome symptoms?
"5mm and my worst symptoms were vomiting, full body twitches and the headaches.... felt like I had…"
6 hours ago
Suzjess posted a blog post

Change to CM since Work-Related Injury

Hi All!  This is my first post, but I have been reading your posts for the last 9 months.  I was…See More
7 hours ago

Top Content 

1 Newbie here!  Just 'diagnosed'

Newbie here! Just 'diagnosed'

Posted by MrsN on April 19, 2014

2 Chiari Surgery Tomorrow

Chiari Surgery Tomorrow

Posted by Kisha Blue on April 21, 2014

3 Opinions on sugery

Opinions on sugery

Posted by Kristy on April 17, 2014

4 where are you all from?

where are you all from?

Posted by Cherie on April 21, 2014

5 Headache after haircut?

Headache after haircut?

Posted by Lindsey on April 19, 2014

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What is ChiariSupport.org?

Welcome to ChiariSupport.org. We're glad you found our Community site. The purpose of this community is for people affected by a Chiari Malformation (types I-IV) to provide each other with emotional support.  We are patients helping patients.  We also have some parents/family members of those who suffer from Chiari Malformation.

What can you do on ChiariSupport.org?

1. Share your story on "My Page". 
2. Start a new discussion on "Forum" and "Discussions".
3. Welcome new members with a comment on their page Welcoming Them To the group.

4. Share your photos/videos that inspire you or help you cope with living with Chiari Malformation.

5. Comment on other discussions and get to know your fellow members, make friends and get the support that WE ALL need.


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Blog Posts

Change to CM since Work-Related Injury

Posted by Suzjess on April 22, 2014 at 10:22pm 0 Comments

Hi All!  This is my first post, but I have been reading your posts for the last 9 months.  I was diagnosed with CM 11 years ago when I thought I was having a stroke.  My symptoms seemed to come in cycles; the migraines, numbness, dizziness, etc.,…


Updates...now that I'm not so new...

Posted by New 2 Chiari on April 22, 2014 at 1:09pm 1 Comment

now that I'm not that new anymore. Here are some updates. Since my last post I have had a second neurology appointment with a different doctor who I very much loved. He actually drew a sketch of a head showed me what was normal and what mine…




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