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If your family has been affected by Chiari, consider Chiari  Support your second home.


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Does Your Pain Have You Considering Suicide?

First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.


What is Chiari Malformation?

Arnold–Chiari Malformation, or often simply known as Chiari Malformation, is a malformation of the brain. Chiari malformation consists of a downward displacement of the cerebellar tonsils through the foramen magnum (the opening at the base of the skull), sometimes causing non-communicating hydrocephalus as a result of obstruction of cerebrospinal fluid (CSF) outflow. The cerebrospinal fluid outflow is caused by phase difference in outflow and influx of blood in the vasculature of the brain. Person with Chiari Malformation often experienced headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, impaired coordination, and, in severe cases, paralysis.

Read more from this link.


Dr Patel @ MUSC

Started by PattyAnn in General. Last reply by Rebecca 7 minutes ago. 1 Reply

 I sent this question about Dr Patel over a year ago.After seeing about 15 specialists and getting no relief from constant dizziness while upright, it was time to find a new doctor .The LP shunt that was put in @ Duke University  and 1 1/2 years of…Continue


Started by Becky-Kelley in General. Last reply by Rebecca 14 minutes ago. 3 Replies

My question is for all you guys who've had any kind of decompression, neck, back surgery. How long did it take for your incision to heal and not be tender? Also, how did you personally get comfortable enough to sleep? ((I am almost 30 days post op.…Continue

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Latest Activity

Rebecca replied to PattyAnn's discussion Dr Patel @ MUSC
"Patty Ann, I am glad you are feeling better. It will be exciting getting that shunt removed and…"
7 minutes ago

Rebecca left a comment for elliott1104
"Hi elliott1104. Its nice to meet you. I see you are waiting on your surgery date. Please let us…"
11 minutes ago
Profile Iconelliott1104 and Christina Scibona joined Chiari Malformation - Online Support Group
14 minutes ago

Rebecca replied to Becky-Kelley's discussion Sleep!!!!!
"I hate hearing my heart beat. Its so creepy. Its one of the things I would LOVE LOVE LOVE to see…"
14 minutes ago

Top Content 

1 Prayers & Happy thoughts

Prayers & Happy thoughts

Posted by Elisa on November 21, 2014

2 New around here...intro

New around here...intro

Posted by fsuchic100 on November 20, 2014

3 Question about MRIs

Question about MRIs

Posted by NieNie0326 on November 18, 2014

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What is ChiariSupport.org?

Welcome to ChiariSupport.org. We're glad you found our Community site. The purpose of this community is for people affected by a Chiari Malformation (types I-IV) to provide each other with emotional support.  We are patients helping patients.  We also have some parents/family members of those who suffer from Chiari Malformation.

What can you do on ChiariSupport.org?

1. Share your story on "My Page". 
2. Start a new discussion on "Forum" and "Discussions".
3. Welcome new members with a comment on their page Welcoming Them To the group.

4. Share your photos/videos that inspire you or help you cope with living with Chiari Malformation.

5. Comment on other discussions and get to know your fellow members, make friends and get the support that WE ALL need.


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Blog Posts


Posted by Phoenix89 on November 22, 2014 at 8:25pm 1 Comment

Okay i feel abit upset cus of my pain of the right side then i just started to cry not from the pain cus im pretty used to it. I thought of type some news that i got. Now i have it on my papers that i'm diagnosed of Chiari 1. I feel peace cus…


Things need to change.

Posted by thughes8 on November 19, 2014 at 10:21pm 3 Comments

So it's been about a year and a half since I last posted an update. I did two different research projects my last semester of college. One was looking at the health related quality of life in individuals with chronic migraines before, during, and…


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