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If your family has been affected by Chiari, consider Chiari  Support your second home.


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Does Your Pain Have You Considering Suicide?

First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.





All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.


What is Chiari Malformation?

Arnold–Chiari Malformation, or often simply known as Chiari Malformation, is a malformation of the brain. Chiari malformation consists of a downward displacement of the cerebellar tonsils through the foramen magnum (the opening at the base of the skull), sometimes causing non-communicating hydrocephalus as a result of obstruction of cerebrospinal fluid (CSF) outflow. The cerebrospinal fluid outflow is caused by phase difference in outflow and influx of blood in the vasculature of the brain. Person with Chiari Malformation often experienced headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, impaired coordination, and, in severe cases, paralysis.

Read more from this link.


Chiari spec. referral pending, cervical stenosis, disk herniation surgery??

Started by Rebecca in General. Last reply by Kevin_19D 9 hours ago. 6 Replies

Hello. I am waiting on referrals to Dr Henderson (my doctor was supposed to make the referral around the 9th of Oct). I also sent my info and images to TCI and Dr. Bolognese (spelling), on Friday the 17th.The local nuerosurgeon says my tonsillar…Continue

Appointment with Dr. B!

Started by Rebecca in General. Last reply by jcdemar 12 hours ago. 3 Replies

Hi. Dr, Bolognese office just called and schedule an appointment for November 3rd. So, hopefully I either get some treatment or he will put my mind at ease and tell me I'm OK and need to look at more physical therapy or something. LOL. Just knowing…Continue

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Latest Activity

Kevin_19D replied to Rebecca's discussion Chiari spec. referral pending, cervical stenosis, disk herniation surgery??
"Yea I know what you mean. I just started this research and have an up hill battle to go through…"
9 hours ago
Rebecca replied to Rebecca's discussion Chiari spec. referral pending, cervical stenosis, disk herniation surgery??
"I had no idea I had anything wrong like that with my neck. They found it while doing a cervical MRI…"
9 hours ago
Kevin_19D replied to Rebecca's discussion Chiari spec. referral pending, cervical stenosis, disk herniation surgery??
"I also have a herniation of my c5&c6 but they are posing on my nerves causing numbness and loss…"
9 hours ago

jcdemar left a comment for Lotus
"Lotus, Welcome! We are glad you became a member here. This is a kind and supportive group where we…"
11 hours ago

Top Content 

1 Surgery Tomorrow Oct. 21

Surgery Tomorrow Oct. 21

Posted by Shar47 on October 20, 2014

2 Scar opened

Scar opened

Posted by jcdemar on October 21, 2014

3 Should the hospital release you straight out of icu?

Should the hospital release you straight out of icu?

Posted by Faith721 on October 21, 2014

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What is ChiariSupport.org?

Welcome to ChiariSupport.org. We're glad you found our Community site. The purpose of this community is for people affected by a Chiari Malformation (types I-IV) to provide each other with emotional support.  We are patients helping patients.  We also have some parents/family members of those who suffer from Chiari Malformation.

What can you do on ChiariSupport.org?

1. Share your story on "My Page". 
2. Start a new discussion on "Forum" and "Discussions".
3. Welcome new members with a comment on their page Welcoming Them To the group.

4. Share your photos/videos that inspire you or help you cope with living with Chiari Malformation.

5. Comment on other discussions and get to know your fellow members, make friends and get the support that WE ALL need.


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Blog Posts

My Silent H***

Posted by Nykki on October 23, 2014 at 9:28am 1 Comment

Fibromyalgia has been a part of my a life for at least 15 years. I have felt these aches and pains for so long and I was always told that I needed to get some rest or I…


I'm "New" around here...

Posted by Becky-Kelley on October 22, 2014 at 1:21pm 2 Comments

So I am new to the group, but not completely new to the ACM family. I was diagnosed in July, but only after fighting upstream at the local hospitals. I had the first round of MRI's…


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