To change your username, click here.
All of the material provided on this site is for informational purposes only and is not a substitute for professional medical advice or treatment.
Always seek the advice of your physician or qualified health provider with any questions regarding your health.
Do not disregard professional medical advice or delay seeking it because of something you read on this site.
Thanks for your cooperation.
Chiari malformation, is usually present at birth and occurs at the back of the head where the brain and spinal cord connect.
There are four types of Chiari malformations:
Children with Chiari I malformations may start to have symptoms as early as age 2 or 3. Some don't have any symptoms until they are older. Symptoms can appear any time. They may start or get worse after a trauma, physical effort or straining, such as exercising, coughing or sneezing.
Syringomyelia, common with Chiari, is a cyst in the center of the spinal cord that is filled with fluid. The cyst, also called a syrinx, can get larger and longer over time, putting pressure on the spinal cord and causing symptoms. If not treated, it may also eventually cause nerve damage.
Read more here about living and coping with CM.
I finally managed to get in with a gp doctor, mostly to get a refill of the fiorcet that the hospital gave me which has been helping quite a bit on most days. The doctor for one basically had no idea what chiari was, and decided I needed to be on an…Continue
I had surgery 3 weeks ago and it seems my symthom of my heart racing at times has not gone away. I can just be sitting in class and i can feel it racing. It comes and goes i know its not anxiety because i could be sleeping and it wakes me up. I know…Continue
My 13 yo son will be having his 2nd decompression next week. We finally feel like we found the right neurosurgeon :) He looked at the MRI & said he could clearly see pressure on the spinal cord that is causing my sons symptoms & has an exact…Continue
Hi everyone! My name is Becky and I wanted to share my story..I am 22 years old and was diagnosed with Chiari Malformation type 1 on July 2015, right before my senior year of college. I have always been active playing sports since a young age and…Continue
Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now.
**Seeking Neurosurgeon Recommendations (NYC/Boston/Baltimore): Newly Diagnosed, Symptomatic 12 Years**
Posted by kris278 on June 14, 2016
Posted by catgirl on June 22, 2016
Posted by Living in Faith on June 19, 2016
Posted by bcto16 on June 23, 2016
Posted by Brian's mom on June 23, 2016
Posted by Lisa on June 24, 2016