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If your family has been affected by Chiari, consider Chiari Support your second home.
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Check our FAQ PAGE.
Read More from our First-Time-User Guide.
First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.
All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
Arnold–Chiari Malformation, or often simply known as Chiari Malformation, is a malformation of the brain. Chiari malformation consists of a downward displacement of the cerebellar tonsils through the foramen magnum (the opening at the base of the skull), sometimes causing non-communicating hydrocephalus as a result of obstruction of cerebrospinal fluid (CSF) outflow. The cerebrospinal fluid outflow is caused by phase difference in outflow and influx of blood in the vasculature of the brain. Person with Chiari Malformation often experienced headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, impaired coordination, and, in severe cases, paralysis.
Read more from this link.
I have recently been getting headaches at night that wake me up and I've been getting dizzy alot. I have not been seen since my 3 month follow-up appt with me Neurosurgeon. Thanks in advance!
I bet half of you have seen a ALS ice bucket Challenge Video. So a bunch of us came up with an idea similar to this! We need awareness, and research. ASAP! I am so sick of Chiarians not getting the right treatment because doctors have no clue how to…Continue
Thank you so much for everyone who replied to my previous post. I was able to see the Nero on Monday. Well after speaking with him he didn't think my pain had anything to do with the Chiari. He stated that it was just a birth defect some people…Continue
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Posted by Cole on August 19, 2014
Posted by Naladove on August 17, 2014
Posted by Mom to Mck on August 15, 2014
Posted by Amy on August 19, 2014
Posted by Meg M on August 15, 2014
Thanks for your cooperation.
Welcome to ChiariSupport.org. We're glad you found our Community site. The purpose of this community is for people affected by a Chiari Malformation (types I-IV) to provide each other with emotional support. We are patients helping patients. We also have some parents/family members of those who suffer from Chiari Malformation.
What can you do on ChiariSupport.org?
1. Share your story on "My Page".
2. Start a new discussion on "Forum" and "Discussions".
3. Welcome new members with a comment on their page Welcoming Them To the group.
4. Share your photos/videos that inspire you or help you cope with living with Chiari Malformation.
5. Comment on other discussions and get to know your fellow members, make friends and get the support that WE ALL need.