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If your family has been affected by Chiari, consider Chiari  Support your second home.


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Does Your Pain Have You Considering Suicide?

First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.



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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.


What is Chiari Malformation?

Arnold–Chiari Malformation, or often simply known as Chiari Malformation, is a malformation of the brain. Chiari malformation consists of a downward displacement of the cerebellar tonsils through the foramen magnum (the opening at the base of the skull), sometimes causing non-communicating hydrocephalus as a result of obstruction of cerebrospinal fluid (CSF) outflow. The cerebrospinal fluid outflow is caused by phase difference in outflow and influx of blood in the vasculature of the brain. Person with Chiari Malformation often experienced headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, impaired coordination, and, in severe cases, paralysis.

Read more from this link.


what to expect

Started by 79dave in General. Last reply by DannieRae 6 minutes ago. 1 Reply

Hello all, just a bitt of background on me. first I am 35 male and have had bad head aches, occasional blurred vision, cant really call it ringing of the ears I would describe it as hearing the ocean in my ears like listing inside a sea shell, fine…Continue

Concerned parent

Started by Hawgdaddy in General. Last reply by Nykki 1 hour ago. 1 Reply

Hello everyone! This is my first post here. I just have a few questions... My daughter was diagnosed with type 1 at 18 months. She has a very small sphyrinx and it has not changed since the initial MRI over 4 years ago. Last year, her MRI revealed…Continue

Still learning and slowly accepting

Started by Michael Salasky in General. Last reply by Nykki 22 hours ago. 2 Replies

Been away for a while on vacation with wifey and kiddos.  They had a blast at the amusement parks we visited.  Smaller parks but it did good for me with my disability.  Emma is a trooper she rode just about every ride she could with her uncle or…Continue

Neck Massagers

Started by Sharon in General. Last reply by razzle51 yesterday. 3 Replies

HI My neck is really stiff and sore. Do anyone know if we can use a neck masssager? If so I got to go get one. I have Chiari with a Syrinx.

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Latest Activity

DannieRae replied to 79dave's discussion what to expect
"Just keep an open mind and listen to the surgeon. Don't allow them to tell that any of your…"
6 minutes ago
79dave posted a discussion

what to expect

Hello all, just a bitt of background on me. first I am 35 male and have had bad head aches,…See More
1 hour ago
Nykki replied to Hawgdaddy's discussion Concerned parent
"Hi, A yearly MRI is not too much. Your daughter is in her growing stages. As her body changes,…"
1 hour ago
Hawgdaddy posted a discussion

Concerned parent

Hello everyone! This is my first post here. I just have a few questions... My daughter was…See More
2 hours ago
79dave posted a status
"I would like to thank both of you for the warm welcome. looking forward to learning more about this."
2 hours ago
79dave and Abby are now friends
2 hours ago

dancermom left a comment for Alejandra
"Welcome, Alejandra, to this supportive community. Feel free to open a discussion to introduce…"
4 hours ago
Profile IconAlejandra, Lee, Hawgdaddy and 1 more joined Chiari Malformation - Online Support Group
4 hours ago

Top Content 

1 VasoVagal reaction and disability.

VasoVagal reaction and disability.

Posted by Amy on July 26, 2014

2 New to this forum

New to this forum

Posted by Steve on July 29, 2014

3 Such a "pain in the neck"...so is there a pillow?

Such a "pain in the neck"...so is there a pillow?

Posted by Stephanie on July 28, 2014

4 I just wanna cry....

I just wanna cry....

Posted by Nykki on July 25, 2014

5 Need to become familiar with Chiari

Need to become familiar with Chiari

Posted by MJE on July 25, 2014

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What is ChiariSupport.org?

Welcome to ChiariSupport.org. We're glad you found our Community site. The purpose of this community is for people affected by a Chiari Malformation (types I-IV) to provide each other with emotional support.  We are patients helping patients.  We also have some parents/family members of those who suffer from Chiari Malformation.

What can you do on ChiariSupport.org?

1. Share your story on "My Page". 
2. Start a new discussion on "Forum" and "Discussions".
3. Welcome new members with a comment on their page Welcoming Them To the group.

4. Share your photos/videos that inspire you or help you cope with living with Chiari Malformation.

5. Comment on other discussions and get to know your fellow members, make friends and get the support that WE ALL need.


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Blog Posts

Reaction from the Remicade

Posted by tinabrat on August 1, 2014 at 1:06am 0 Comments

Broke out into yellow blisters every where that burnt like hell.  I have Stevens-Johnson Syndrome and I recommend to avoid treatment like I received for the weeks leading up to the painful condition.  

I cannot take much more of the pain,…


UPDATE: Decompression Surgery @ Montreal Neurology Institute

Posted by MTLChiari1 on July 25, 2014 at 10:53pm 2 Comments

So after finally finding a Neurologist in Montreal I was told that decompression surgeries are not done in Canada.  My symptoms persisted and I became extremely frustrated! It took a work collegue to contact some of his friends to find someone…


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