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If your family has been affected by Chiari, consider Chiari  Support your second home.

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Does Your Pain Have You Considering Suicide?

First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

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Disclaimer

All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

 

What is Chiari Malformation?

Arnold–Chiari Malformation, or often simply known as Chiari Malformation, is a malformation of the brain. Chiari malformation consists of a downward displacement of the cerebellar tonsils through the foramen magnum (the opening at the base of the skull), sometimes causing non-communicating hydrocephalus as a result of obstruction of cerebrospinal fluid (CSF) outflow. The cerebrospinal fluid outflow is caused by phase difference in outflow and influx of blood in the vasculature of the brain. Person with Chiari Malformation often experienced headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, impaired coordination, and, in severe cases, paralysis.

Read more from this link.

Forum

Ready to go home.

Started by Amy in General 1 hour ago. 0 Replies

I had a VP Shunt put in on Monday and I am still in the hospital. My neurosurgeon has made it very clear to me that all of his other patients that have had this surgery went home the next day and I am way past my stay. Needless to say this has been…Continue

Opinions on sugery

Started by Kristy in General. Last reply by Kristy 2 hours ago. 3 Replies

Hello friendsMy surgery is scheduled for 6/26/14, but I am starting to have second thoughts. When I decided to have surgery I was having dizziness all day everyday, along with migraines, back pain, vision changes. In the last few weeks, I have…Continue

Tags: thoughts, second, surgery

New symptoms and more complications

Started by Roy Denno in General. Last reply by Kristy 4 hours ago. 2 Replies

Hi I want to introduce my self, my name is Roy. I am new here, and have lots of concerns and questions that need answers please! I have arnold chiari malformation, and after at least ten Years I found a doctor who would listen to me. He asked me…Continue

14 day migraine. Tired of doctors and pills.

Started by Nynda in General. Last reply by Nynda 4 hours ago. 10 Replies

I am in day 14 of a migraine. I have had no break from it. Pain medicines have not helped. Migraine medicines have not helped. Sneezing, coughing, bending over, exertion makes it worse. Every doctor just throws another pill at it. Ice and heat do…Continue

Join the Global Genes Webinar on Health Insurance Issues

Find out how you can better evaluate what option is best suited for your individual needs. Learn about the different types of health insurance and emerging trends in benefit design and affordability for individuals with rare diseases.

Join the  FREE Navigating Insurance Issues Webinar on April 30, 2014 at 10am PST / 1pm EST / 6pm in UKRegister Now!

For more information about the Webinar, visit this link.

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Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

Amy posted a discussion

Ready to go home.

I had a VP Shunt put in on Monday and I am still in the hospital. My neurosurgeon has made it very…See More
1 hour ago
Kristy replied to Kristy's discussion Opinions on sugery
"Chiari type 1, with syrinx in thoracic spine. I trust my surgeon, I have faith he will do a good…"
2 hours ago
Melissa Kinner replied to Kristy's discussion Opinions on sugery
"Hello, what type Chiair d you have? What is the surgery for? Decompression? I had the decompression…"
2 hours ago
Kristy replied to Kristy's discussion Opinions on sugery
"Also, is it realistic to think I can return to work as a nurse (desk job mainly) 8 weeks after…"
3 hours ago
Kristy posted a discussion

Opinions on sugery

Hello friendsMy surgery is scheduled for 6/26/14, but I am starting to have second thoughts. When I…See More
4 hours ago
Kristy replied to Roy Denno's discussion New symptoms and more complications
"Roy, Ive not had my surgery yet, so I cannot offer you any advice, but I am so sorry this is…"
4 hours ago
Nynda replied to Nynda's discussion 14 day migraine. Tired of doctors and pills.
"I have been to the doctor and hospital multiple times. I'm not getting the help that I need."
4 hours ago
razzle51 posted a discussion
5 hours ago

Top Content 

1 Dizziness from Cervical Traction

Dizziness from Cervical Traction

Posted by Donna1013 on April 15, 2014

2 Family and friends

Family and friends

Posted by Dingaling on April 12, 2014

3 Has anyone been prescribed Diamox Sequels 500mg, CP12 (This is Extended Release taken 2x day, every 12 hours)

Has anyone been prescribed Diamox Sequels 500mg, CP12 (This is Extended Release taken 2x day, every 12 hours)

Posted by kms on April 14, 2014

4 eyelid drooping

eyelid drooping

Posted by jessica on April 14, 2014

5 6 months post op... Help

6 months post op... Help

Posted by Jennifer on March 27, 2014

Let's Keep It Nice & Clean

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  5. Specific doctor or hospital names mentioned in a negative context, for legal reasons.
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What is ChiariSupport.org?

Welcome to ChiariSupport.org. We're glad you found our Community site. The purpose of this community is for people affected by a Chiari Malformation (types I-IV) to provide each other with emotional support.  We are patients helping patients.  We also have some parents/family members of those who suffer from Chiari Malformation.

What can you do on ChiariSupport.org?

1. Share your story on "My Page". 
2. Start a new discussion on "Forum" and "Discussions".
3. Welcome new members with a comment on their page Welcoming Them To the group.

4. Share your photos/videos that inspire you or help you cope with living with Chiari Malformation.

5. Comment on other discussions and get to know your fellow members, make friends and get the support that WE ALL need.

 
 
 

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Blog Posts

my story

Posted by Tammy on April 16, 2014 at 8:01pm 0 Comments

Hi everyone I know I have not posted for awhile but wanted to give everyone a update on me personally. I had my decompression done

6-19-13 and boy it was a tough road to say the least! My surgery went very well and was successful i had a…

Continue

her Hi,I am 59 years old. I had my first debilitating migraine when I was 4. My mother and her mother ignored my symptoms. They did not believe my pain and tormented me because of it. I was "Brainwas…

Posted by Vix on April 16, 2014 at 11:58am 6 Comments

her Hi,I am 59 years old. I had my first debilitating migraine when I was 4. My mother and her mother ignored my symptoms. They did not believe my pain and tormented me because of it. I was "Brainwashed" (no pun) into thinking I was a crazy…

Continue

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