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If your family has been affected by Chiari, consider Chiari  Support your second home.


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5. Join or Create a Group
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Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.

Does Your Pain Have You Considering Suicide?

First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.



ClinicalTrials.gov Studies

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.


What is Chiari Malformation?

Arnold–Chiari Malformation, or often simply known as Chiari Malformation, is a malformation of the brain. Chiari malformation consists of a downward displacement of the cerebellar tonsils through the foramen magnum (the opening at the base of the skull), sometimes causing non-communicating hydrocephalus as a result of obstruction of cerebrospinal fluid (CSF) outflow. The cerebrospinal fluid outflow is caused by phase difference in outflow and influx of blood in the vasculature of the brain. Person with Chiari Malformation often experienced headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, impaired coordination, and, in severe cases, paralysis.

Read more from this link.


Surgery Tomorrow Oct. 21

Started by Shar47 in General. Last reply by Stephanie 3 hours ago. 6 Replies

Tomorrow is my surgery at 8:30 and I am so very nervous. Please, if any of you are praying people, say a prayer for me. ;) I will let everyone know how I am when feeling  better. Continue

Doctors in Arizona

Started by Susan J in General. Last reply by lisaree 3 hours ago. 25 Replies

I'm reaching out to anyone who has neurologists, neurosurgeons, and/or pain doctors that you would recommend in Arizona.  I was diagnosised in November 2009. I got a second opionion in January 2010. I had my decompression surgery on February 11,…Continue

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Latest Activity

jcdemar left a comment for LeAnn Shockley
"LeAnn, Welcome! We are glad you became a member here. This is a kind and supportive group where we…"
1 hour ago
Profile IconLeAnn Shockley, Kelly D and Phoenix89 joined Chiari Malformation - Online Support Group
1 hour ago
Stephanie replied to Shar47's discussion Surgery Tomorrow Oct. 21
"Praying for you to have a successful surgery and a speedy recovery. "
3 hours ago
lisaree replied to Susan J's discussion Doctors in Arizona
"Hi Rachel, Sorry but I have not been on here in along time. So I haven't seen your post till…"
3 hours ago

Top Content 

1 just wondering

just wondering

Posted by youngguy78 on October 15, 2014

2 Surgery Tomorrow Oct. 21

Surgery Tomorrow Oct. 21

Posted by Shar47 on October 20, 2014

3 Must see for members - dr Trumble

Must see for members - dr Trumble

Posted by Beeba on October 17, 2014

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Thanks for your cooperation.

What is ChiariSupport.org?

Welcome to ChiariSupport.org. We're glad you found our Community site. The purpose of this community is for people affected by a Chiari Malformation (types I-IV) to provide each other with emotional support.  We are patients helping patients.  We also have some parents/family members of those who suffer from Chiari Malformation.

What can you do on ChiariSupport.org?

1. Share your story on "My Page". 
2. Start a new discussion on "Forum" and "Discussions".
3. Welcome new members with a comment on their page Welcoming Them To the group.

4. Share your photos/videos that inspire you or help you cope with living with Chiari Malformation.

5. Comment on other discussions and get to know your fellow members, make friends and get the support that WE ALL need.


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Blog Posts


Posted by NieNie0326 on October 20, 2014 at 8:46pm 0 Comments

Okay, be patient with me, this is hard to explain/describe. 

I consider my scar to just be the raised up scar tissue part, not whole incision line... but I think I've discovered what has been causing some of my…


Symptom confusion

Posted by NieNie0326 on October 17, 2014 at 10:39am 1 Comment

I have a few questions and any response will be helpful.

I have been having severe lower abdominal pain since July and more recently this has been accompanied by back pain... the pain starts between my shoulder blades and radiates…


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