Patient to patient support for those affected by Chiari Malformations.
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Inga's Story of Hope
Added by michael Jones
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Patient Communities
* Aicardi Syndrome
* Adrenoleukodystrophy (ALD)
* Arteriovenous Malformation (AVM)
* Ataxia (International)
* Ataxia (U.S.A.)
* Atrial Septal Defect
* Brain Aneurysms
* Chiari Malformation
* Crohn's Disease
* Fibromyalgia
* Metastatic Breast Cancer
* Myositis
* Tourette's Syndrome
* Trigeminal Neuralgia (TN)
* Von Willebrand's Disease (VWD)
What is ChiariSupport.org?
If you are looking for information about Chiari malformations, we recommend Organized Wisdom.
What can you do on ChiariSupport.org?
1. Share your story on "My Page"
2. Start a new discussion on "Forum"
3. Welcome new members with a comment on their page
This community is brought to you by BensFriends.org Patient Communities.
What is a Chiari Malformation?
The incidence of Chiari 1 malformation, defined as tonsilar herniations of 3 to 5 mm or greater, is approximately 1 in 1,200.[citation needed] The incidence of symptomatic Chiari is less but unknown.
(Source: Wikipedia)
The Chiari Institute
Blog Posts
An Introduction to Bensfriends.org !!!
We have some important information we are happy to announce!
As you all know we run support networks for people affected who have a rar
… ContinuePosted by michael Jones on July 15, 2010 at 11:57pm
Bellingham woman shares her rare brain disorder for 'House' TV show
For four days in late February, best friends Laura Slyman and Kaitlin Sellereit made a mini-vacation out of their trip to the Los Angeles area. Th
Posted by Ben Munoz on May 2, 2010 at 9:12pm
Welcome Blog to"The Official Chiari Malformation Support Community"
Posted by michael Jones on February 19, 2010 at 11:46pm — 2 Comments
Forum
Second surgery 6 Replies
how will i know if i need to have a second surgery?
Started by Ruby Jean Niduaza. Last reply by joelene hossack Jul 25.
Sports 4 Replies
Well, yet another headache. It stinks that I can't even play tennis without getting a headache. But I guess I shouldn't complain about it, I can still do fun stuff and play other sports but I guess I…
Started by Sam Marshall. Last reply by Sam Marshall Jul 10.
Headaches in the morning 6 Replies
I have headaches every morning and I was wondering if anyone had any suggestions about how to not have as severe headaches in the morning or if they knew a different way to get rid of it besides taki…
Started by Sam Marshall. Last reply by Sam Marshall Jul 10.
Introduce yourself. 22 Replies
This site and forum is a great resource for us. In effort to become more involved with this site let's take a moment to introduce ourselves. We can be a great source of support for each other!!Tell…
Started by shalunya. Last reply by Scott Orn Jul 6.
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