Welcome! You're not alone.
If your family has been affected by Chiari, consider Chiari Support your second home.
Read More from our First-Time-User Guide
First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.
All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
Ben Munoz & Ben's Friends were featured in Forbes over the weekend! Thanks to the Members who talked to the author, Sarah McKinney.
"We're In This Together: Stories & Tips from Patients with Rare Diseases" can be found HERE.
Arnold–Chiari Malformation, or often simply known as Chiari Malformation, is a malformation of the brain. Chiari malformation consists of a downward displacement of the cerebellar tonsils through the foramen magnum (the opening at the base of the skull), sometimes causing non-communicating hydrocephalus as a result of obstruction of cerebrospinal fluid (CSF) outflow. The cerebrospinal fluid outflow is caused by phase difference in outflow and influx of blood in the vasculature of the brain. Person with Chiari Malformation often experienced headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, impaired coordination, and, in severe cases, paralysis.
Read more from this link.
Is there anyone out there that has had a toddler 0- 3 who has had decompression surgery and has had issues. My child cant vocalize what is going on and I know he is hurting but its a guessing game at this time of what is happening.
So I had the decompression surgery on Sept. 9, 2013. Everything went great, according to my NS. I went home 3 day post-op. One month post-op, I was doing all my normal activities, except driving. I waited until my 6-wk checkup to get cleared to…Continue
Still trying to figure out what is going on with me. I was just diagnosed with a Chiari Malformation after spending a year getting treated for "migraines. Nothing even touched the pain I experience. I had to beg to see a neurologist - that was…Continue
Posted by jessica on March 2, 2014
Posted by BuckeyeJagFan on March 7, 2014
Posted by Meghan on March 5, 2014
Posted by Unwritten on March 4, 2014
Posted by Ophelia1568 on March 6, 2014
Thanks for your cooperation.
Welcome to ChiariSupport.org. We're glad you found our Community site. The purpose of this community is for people affected by a Chiari Malformation (types I-IV) to provide each other with emotional support. We are patients helping patients. We also have some parents/family members of those who suffer from Chiari Malformation.
What can you do on ChiariSupport.org?
1. Share your story on "My Page".
2. Start a new discussion on "Forum" and "Discussions".
3. Welcome new members with a comment on their page Welcoming Them To the group.
4. Share your photos/videos that inspire you or help you cope with living with Chiari Malformation.
5. Comment on other discussions and get to know your fellow members, make friends and get the support that WE ALL need.