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Chiari malformation, is usually present at birth and occurs at the back of the head where the brain and spinal cord connect.
There are four types of Chiari malformations:
Children with Chiari I malformations may start to have symptoms as early as age 2 or 3. Some don't have any symptoms until they are older. Symptoms can appear any time. They may start or get worse after a trauma, physical effort or straining, such as exercising, coughing or sneezing.
Syringomyelia, common with Chiari, is a cyst in the center of the spinal cord that is filled with fluid. The cyst, also called a syrinx, can get larger and longer over time, putting pressure on the spinal cord and causing symptoms. If not treated, it may also eventually cause nerve damage.
Read more here about living and coping with CM.
Hi I'm a mother to a 6 yr old boy. He is showing no signs of problems but through a ct scan from a fall ,checking for broken facial bones, he has been diagnosed with 1) basilar invagination2) occipital c1 assimilation3) thoracic syrinxWe are…Continue
Hi!I am going into my 2nd year of studies and I feel I could benefit from a different "exam environment,"(lower stress atmosphere, fewer people, etc). However it appears that the only way I could do this is through my school's disability service…Continue
Okkk in less than a week I wil have my suurgery.. Question how things are gonna be that first day? Am I gonna be awake? Able to idk listen to music, watch tv? Greys anatomy is that day and im a fan of the show. Could i watch it? Ahah lame and stupid…Continue
Hi, My daughter is 17 just diagnosed with 8mm CM-1 neurologist said "in his opinion it's mild". He told me that we will need to build a team here in Alaska then go out of state. Has anyone out there had a "mild" case of CM-1 is this such a thing?…Continue
Hello Everyone.I know this is listed as a New Member category; I'm actually a returning member, from back in the day when we were still below 1000 people. It was A VERY PROUD moment for all of us when the 1000 mark was made. I did take some time…Continue
Hi everyone,I am new member in this family.I am 28 years old.Recently i diagnosed with Chiari type 1 with huge range of Syrinx.Symptoms are double vison,weak muscles,pain and stiffness in left part of upper body,tremor,tingling,Slowness in movement…Continue
I'm new, but this is my first time posting. My daughter has a 9mm herniation with fairly significant attenuation of the CSF. Her diagnosis came about through a rare, unfortunate incident. When she was in hospital due to a stomach virus (she does NOT…Continue
Hello, hope everyone is having a blessed day. Well, why I am reading all these post my heart does indeed go out to everyone suffering from this nasty disorder. When my son was born, he was breach. When he became 4 we realized he had a tethered cord,…Continue
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