Welcome! You're not alone.

If your family has been affected by Chiari, consider Chiari  Support your second home.


1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.

Need a Doctor or Specialist?


  • Add Photos
  • View All

Does Your Pain Have You Considering Suicide?

First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.



  • Add Videos
  • View All


All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.


What is Chiari Malformation?

Arnold–Chiari Malformation, or often simply known as Chiari Malformation, is a malformation of the brain. Chiari malformation consists of a downward displacement of the cerebellar tonsils through the foramen magnum (the opening at the base of the skull), sometimes causing non-communicating hydrocephalus as a result of obstruction of cerebrospinal fluid (CSF) outflow. The cerebrospinal fluid outflow is caused by phase difference in outflow and influx of blood in the vasculature of the brain. Person with Chiari Malformation often experienced headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, impaired coordination, and, in severe cases, paralysis.

Read more from this link.


Pain Changes Me

Started by New Brunswick in General. Last reply by jcdemar 4 minutes ago. 2 Replies

The pain caused from my Chiari seems to be never ending. I have it as soon as I wake up in the morning until I go to bed at night. Sometimes I wake in the middle of the night with unbearable pain that just won't go away in my head and neck. I have…Continue

Mri results

Started by Ogott in General. Last reply by Elisa 5 minutes ago. 2 Replies

Well my mri results say i do not have chiari. Back to drawing board. Will be praying for all of you. Hope they can figure me out. Neurologist next


Started by Elisa in General. Last reply by Abby 12 minutes ago. 7 Replies

I know September is Chiari awareness month, but really why does my body feel like it has to remind me. This past month I have felt the worst I have felt in a long time. I've called in or had to leave work early at least 3 times this month already.…Continue

Skype appt w/Dr. Bolognese today-anxious/nervous/ACK! Seeking support & comfort

Started by Unwritten in General. Last reply by jcdemar 28 minutes ago. 7 Replies

Hey everyone.  It's been a while since I posted--just got bogged down navigating the gauntlet of tests, appointments, second opinions, BLAH.  I had given up on my Chiari being any part of my symptoms (NO ONE out here was supporting that theory)…Continue

Join Our Chiari Support Group. Connect With Others Like You.

Mobile App and E-Book Available for Download!

Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

jcdemar replied to New Brunswick's discussion Pain Changes Me
"New B, hang in there. I'm sorry and I can relate. What Em said...magnesium, arnica, and…"
4 minutes ago
Elisa replied to Ogott's discussion Mri results
"Hope they figure it out good luck, while I love the support and resources here I don't wish…"
5 minutes ago

Abby replied to Ogott's discussion Mri results
"I would ask for a copy of my MRI and the disc for future references.  You can have Chiari 0…"
10 minutes ago

Abby replied to Elisa's discussion aware...
"Elisa, Sounds a lot like dysautonomia.  Go to Dinet.org and look up the symptoms and read…"
12 minutes ago
Ogott posted a discussion

Mri results

Well my mri results say i do not have chiari. Back to drawing board. Will be praying for all of…See More
25 minutes ago

jcdemar left a comment for Rachel Trulove
"Rachel, Welcome! We are glad you became a member here. This is a kind and supportive group where we…"
26 minutes ago

Abby left a comment for Rachel Trulove
"Hello and Welcome, You have come to the right place for great support and understanding. Glad your…"
27 minutes ago

jcdemar replied to Unwritten's discussion Skype appt w/Dr. Bolognese today-anxious/nervous/ACK! Seeking support & comfort
"I'm glad you were listened to. There's nothing wrong with ruling out other things. While…"
28 minutes ago

Top Content 

1 Meds - Topiramate (Topomax)

Meds - Topiramate (Topomax)

Posted by Corrinart Paintings on September 11, 2014

2 Hello


Posted by Ogott on September 11, 2014

3 Aaaaaaaaaaaaaaaaaaaaa!!!!!!!!!!!!!!!!!!!!!!!


Posted by Ogott on September 12, 2014

4 OMG!!!!!!


Posted by brandi* on September 10, 2014

5 Strange sensation

Strange sensation

Posted by Ogott on September 12, 2014

Let's Keep It Nice & Clean

  1. No Spam
  2. No Personal attacks
  3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
  4. No Profanity, sexual references and illegal activity subject matter in the Chat Room.
  5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. Specific doctor or hospital names in a positive context are welcome.
  6. No sharing of members' posts to other sites without their express permission.
  7. There are many sites for discussing religion and politics. This is not one of them. Divisive posts about religion and politics will be deleted.

Thanks for your cooperation.

What is ChiariSupport.org?

Welcome to ChiariSupport.org. We're glad you found our Community site. The purpose of this community is for people affected by a Chiari Malformation (types I-IV) to provide each other with emotional support.  We are patients helping patients.  We also have some parents/family members of those who suffer from Chiari Malformation.

What can you do on ChiariSupport.org?

1. Share your story on "My Page". 
2. Start a new discussion on "Forum" and "Discussions".
3. Welcome new members with a comment on their page Welcoming Them To the group.

4. Share your photos/videos that inspire you or help you cope with living with Chiari Malformation.

5. Comment on other discussions and get to know your fellow members, make friends and get the support that WE ALL need.


Help Us Help Others

Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Bens Friends

To Support ChiariSupport.org, Click an Ad. Or Two.

Blog Posts

Dizziness months after surgery?????

Posted by Jnd on September 11, 2014 at 1:13pm 2 Comments

I had my decompression surgery in May and went successful.....I spent 3 days in neuroICU and then 6 more days on Nero floor!!! Things have been great in recovery.....until a couple of weeks ago......I have started, as I move my neck, hearing this…


Teenager Raising Awareness

Posted by pammyg on September 8, 2014 at 8:30am 2 Comments

Hello All,

     I just wanted to take the time to show you the news clip my 17 yr old daughter did to help raise awareness and help not only her 12 yr old Brother but also all of you who are also suffering.  This clip has been shared well…


Gift Store

© 2014   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service