Welcome! You're not alone.
If your family has been affected by Chiari, consider Chiari Support your second home.
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First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.
All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
Arnold–Chiari Malformation, or often simply known as Chiari Malformation, is a malformation of the brain. Chiari malformation consists of a downward displacement of the cerebellar tonsils through the foramen magnum (the opening at the base of the skull), sometimes causing non-communicating hydrocephalus as a result of obstruction of cerebrospinal fluid (CSF) outflow. The cerebrospinal fluid outflow is caused by phase difference in outflow and influx of blood in the vasculature of the brain. Person with Chiari Malformation often experienced headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, impaired coordination, and, in severe cases, paralysis.
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I had a VP Shunt put in on Monday and I am still in the hospital. My neurosurgeon has made it very clear to me that all of his other patients that have had this surgery went home the next day and I am way past my stay. Needless to say this has been…Continue
Hello friendsMy surgery is scheduled for 6/26/14, but I am starting to have second thoughts. When I decided to have surgery I was having dizziness all day everyday, along with migraines, back pain, vision changes. In the last few weeks, I have…Continue
Hi I want to introduce my self, my name is Roy. I am new here, and have lots of concerns and questions that need answers please! I have arnold chiari malformation, and after at least ten Years I found a doctor who would listen to me. He asked me…Continue
I am in day 14 of a migraine. I have had no break from it. Pain medicines have not helped. Migraine medicines have not helped. Sneezing, coughing, bending over, exertion makes it worse. Every doctor just throws another pill at it. Ice and heat do…Continue
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Posted by Donna1013 on April 15, 2014
Posted by Dingaling on April 12, 2014
Has anyone been prescribed Diamox Sequels 500mg, CP12 (This is Extended Release taken 2x day, every 12 hours)
Posted by kms on April 14, 2014
Posted by jessica on April 14, 2014
Posted by Jennifer on March 27, 2014
Thanks for your cooperation.
Welcome to ChiariSupport.org. We're glad you found our Community site. The purpose of this community is for people affected by a Chiari Malformation (types I-IV) to provide each other with emotional support. We are patients helping patients. We also have some parents/family members of those who suffer from Chiari Malformation.
What can you do on ChiariSupport.org?
1. Share your story on "My Page".
2. Start a new discussion on "Forum" and "Discussions".
3. Welcome new members with a comment on their page Welcoming Them To the group.
4. Share your photos/videos that inspire you or help you cope with living with Chiari Malformation.
5. Comment on other discussions and get to know your fellow members, make friends and get the support that WE ALL need.