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What is Chiari Malformation?

Chiari malformation, is usually present at birth and occurs at the back of the head where the brain and spinal cord connect.

There are four types of Chiari malformations:

  • Type 1 – occurs when the base of the skull and upper spinal area do not form properly. A type 1 Chiari malformation commonly goes unnoticed until problems arise in the adolescent or adult years of life. The headaches most typical of Chiari I malformations are usually located at the back of the head, and are often made worse by exertion.
  • Type 2 – sometimes known as an Arnold-Chiari malformation, a type 2 Chiari malformation is caused by part of the back of the brain shifting downward through the bottom of the skull. it is seen in infants who are born with spina bifida and can also be associated with hydrocephalus, a condition in which there is an overproduction or lack of absorption of the cerebral spinal fluid (CSF).
  • Type 3 – occurs when the back of the brain protrudes out of an opening in the back of the skull area.
  • Type 4 – occur when the back of the brain fails to develop normally.

Children with Chiari I malformations may start to have symptoms as early as age 2 or 3. Some don't have any symptoms until they are older. Symptoms can appear any time. They may start or get worse after a trauma, physical effort or straining, such as exercising, coughing or sneezing.

Syringomyelia, common with Chiari, is a cyst in the center of the spinal cord that is filled with fluid. The cyst, also called a syrinx, can get larger and longer over time, putting pressure on the spinal cord and causing symptoms. If not treated, it may also eventually cause nerve damage.

Read more here about living and coping with CM. 


Please help

Started by Amy Huzicka in Parents and Caretakers of Children with Chiari 8 hours ago. 0 Replies

Hi I'm a mother to a 6 yr old boy. He is showing no signs of problems but through a ct scan from a fall ,checking for broken facial bones, he has been diagnosed with 1) basilar invagination2) occipital c1 assimilation3) thoracic syrinxWe are…Continue

University Disability Services

Started by Natasha in Symptoms. Last reply by gabby jazzypants 15 hours ago. 1 Reply

Hi!I am going into my 2nd year of studies and I feel I could benefit from a different "exam environment,"(lower stress atmosphere, fewer people, etc). However it appears that the only way I could do this is through my school's disability service…Continue

Surgery in less than a week

Started by Glory4 in Surgery and Recovery. Last reply by b2wc 22 hours ago. 4 Replies

Okkk in less than a week I wil have my suurgery.. Question how things are gonna be that first day? Am I gonna be awake? Able to idk listen to music, watch tv? Greys anatomy is that day and im a fan of the show. Could i watch it? Ahah lame and stupid…Continue

Advice is needed

Started by mommamikula in Parents and Caretakers of Children with Chiari. Last reply by b2wc 23 hours ago. 25 Replies

Hi, My daughter is 17 just diagnosed with 8mm CM-1 neurologist said "in his opinion it's mild". He told me that we will need to build a team here in Alaska then go out of state. Has anyone out there had a "mild" case of CM-1 is this such a thing?…Continue

Hello Again, I'm back...

Started by Lori D in New Member Introductions yesterday. 0 Replies

Hello Everyone.I know this is listed as a New Member category;  I'm actually a returning member, from back in the day when we were still below 1000 people.  It was A VERY PROUD moment for all of us when the 1000 mark was made.  I did take some time…Continue

Chiari type 1 malformation with cervicothoracic syrinx

Started by Shiv in General on Thursday. 0 Replies

Hi everyone,I am new member in this family.I am 28 years old.Recently i diagnosed with Chiari type 1 with huge range of Syrinx.Symptoms are double vison,weak muscles,pain and stiffness in left part of upper body,tremor,tingling,Slowness in movement…Continue

Newbie finally posting

Started by KellGreen in New Member Introductions. Last reply by BaltimoreBaby on Wednesday. 2 Replies

I'm new, but this is my first time posting. My daughter has a 9mm herniation with fairly significant attenuation of the CSF. Her diagnosis came about through a rare, unfortunate incident. When she was in hospital due to a stomach virus (she does NOT…Continue


Started by murraydarla@yahoo.com in Emotional Support. Last reply by Jules G on Wednesday. 1 Reply

Hello, hope everyone is having a blessed day. Well, why I am reading all these post my heart does indeed go out to everyone suffering from this nasty disorder. When my son was born, he was breach. When he became 4 we realized he had a tethered cord,…Continue

Latest Activity

Jules G commented on Angela's blog post fatty infiltration af the filum terminalle
"Angela, I'd suggest that you repost this as a discussion on the main board as blogs get fewer…"
3 hours ago
Amy Huzicka 's discussion was featured

Please help

Hi I'm a mother to a 6 yr old boy. He is showing no signs of problems but through a ct scan from a…See More
7 hours ago
Profile IconBrigid, Elizabeth Masters, Jessie Mayhem and 3 more joined Chiari Malformation - Online Support Group
7 hours ago
Amy Huzicka left a comment for Amy Huzicka
"Thank you. I hope I started my discussion on the right board. I'm heartbroken and so upset…"
8 hours ago
Amy Huzicka posted a discussion

Please help

Hi I'm a mother to a 6 yr old boy. He is showing no signs of problems but through a ct scan from a…See More
8 hours ago
Debi added a discussion to the group Californian Chiarians


Hello everyone, There is a chance that I might need to go on permanent disability. Has anyone gone…See More
13 hours ago

Jules G left a comment for Jessie Mayhem
"Hello Jessie, welcome to Chiari Support. Feel welcome to join straight in with any discussions that…"
14 hours ago
Debi posted a status
"hi Jules !"
15 hours ago

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Top Content 

1 Advice is needed

Advice is needed

Posted by mommamikula on September 24, 2015

2 Hi thank you for the welcome

Hi thank you for the welcome

Posted by Trecia Yealy on September 28, 2015

3 my surgery

my surgery

Posted by Andrea on September 24, 2015

4 Post op for almost 2 years, back to feeling crappy.

Post op for almost 2 years, back to feeling crappy.

Posted by tom88 on October 2, 2015

5 having seizure like symptoms

having seizure like symptoms

Posted by nicky on October 3, 2015

6 Surgery in less than a week

Surgery in less than a week

Posted by Glory4 on October 3, 2015

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Blogs are for tracking your personal journey and sharing your reflections, humor, or insights with the community. If you have questions and would like responses, please start a thread in Discussions, as your question will be seen by more people and receive more answers. 

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fatty infiltration af the filum terminalle

Posted by Angela on October 6, 2015 at 5:36pm 1 Comment

My daughters full spine MRI said she has fatty infiltration of the filum terminalle. She has 10 mm and abnormal neural movement of cerebral tonsils. Does anyone know what this means?

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