Chiari Online Support Group
Chiari malformation, is usually present at birth and occurs at the back of the head where the brain and spinal cord connect.
Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them
Newbies Guide to Chiari
Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information
New Member Introductions
New members, start your experience here. Introduce yourself and share your story. Let us welcome you
Open discussion about topics related to Chiari
Success Stories & Positive Pick-Me-Ups
A positive and hope-filled place to exchange words of encouragement, personal successes, surgery success, inspiring moments and coping strategies.
Surgery and Recovery
This is the place to discuss surgery experiences and ask questions.
Symptoms you are having and anything you have found that helps your symptoms.
Having a bad day? Are you flaring? We are here to listen and we get what you are going through. The is a safe place to share your feelings and to unburden yourself.
This is the place to discuss all the healing modalities that help you cope with Chiari and help you nourish your mind, body, and spirit. Please remember to discuss any new therapies you are considering trying with your physician.
What's New With You?
A place to reconnect with community and share personal and health updates.
Information To Share With Loved Ones
Information and letters to give to loved ones, coworkers, and caretakers of someone with Chiari
Parents and Caretakers of Children with Chiari
The challenges of dealing with a child with Chiari can be almost overwhelming at time but there is also some practical considerations and common questions. Here is the place to ask.
Physician Recommendations (Positive Review Only)
A good provider is hard to find! Please help out your Chiari Friends by recommending your favorite practitioners here. Hopefully, with your help, we will be able to develop a comprehensive list of quality, compassionate, and understanding providers. Please note that we can only accept positive provider reviews on this site.
This is our new chat. Just reply. If you want to go to a private chat simply click on the mebers avatar and start messaging. You can invite others to join you. For now we don't have a "who's online" box but hope to add that feature soon!
Member photos and videos
Discussion about this site, its organization, how it works, and how we can improve it.
Click here to enter chat