Chiari Malformation - Online Support Group
We are patients and survivors of Chiari (types I-IV), here for your support.
"To Know the Joy of Giving"
First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.
September 8, 2012 from 8am to 7pm – Fredericksburg, Virginia
0 Comments 0 LikesSeptember 22, 2012 from 7am to 12pm – TBA
0 Comments 0 LikesPlease click on FIRST TIME USERS and WELCOME! tabs for helpful info, also the Help tab for Links . THANKS!
Started by Christy Mullen in General. Last reply by wendyanne 17 minutes ago. 3 Replies 0 Likes
I know there are afew blue star momma's in here and chances are some vets, family of military. Happy Memorial Day to you all, and to my brothers and sisters in arms and their mommas~ if you ever need help or talk send me a message and I'll help all…Continue
Started by mlubbers in General. Last reply by Poptart 53 minutes ago. 5 Replies 0 Likes
I just found out last week that I have a Chiari Malformation. I have never heard of this before and just starting my research. Any help you can give me is greatly appreciated. They found it after the MRI I just had and now they are trying to…Continue
Started by Joanna in General. Last reply by Poptart 5 hours ago. 11 Replies 0 Likes
What about facial pressure and pain? I have always thought I had sinus problems but everytime they do a CT scan my sinuses are clear. They can see swelling but have never been able to tell me why It hurts all the time. Can the fluid buildup put…Continue
Started by Twana in General. Last reply by mommy.of.two.5483 9 hours ago. 12 Replies 0 Likes
Have you ever had the feeling noone likes you or that your all alone. Thats what Im going through. I have been wondering what I have done in the past 4 years to lose sooo many famlie and friends. I have been waiting for my voice and speach to return…Continue
Welcome to ChiariSupport.org. We're glad you found our Community site. The purpose of this community is for people affected by a Chiari Malformation (types I-IV) to provide each other with emotional support. We are patients helping patients. We also have some parents/family members of those who suffer from Chiari Malformation.
What can you do on ChiariSupport.org?
1. Share your story on "My Page".
2. Start a new discussion on "Forum" and "Discussions".
3. Welcome new members with a comment on their page Welcoming Them To the group.
4. Share your photos/videos that inspire you or help you cope with living with Chiari Malformation.
5. Comment on other discussions and get to know your fellow members, make friends and get the support that WE ALL need.
wendyanne replied to Christy Mullen's discussion Memorial Day
Poptart replied to mlubbers's discussion Just Diagnosed... What do I ask?
Christy Mullen replied to Christy Mullen's discussion Memorial Day

mlubbers replied to mlubbers's discussion Just Diagnosed... What do I ask?
Christy Mullen posted a discussion| 1 |
Surgery 5/24!Posted by Queen_Vic on May 23, 2012 |
| 2 |
I am interested on who has been dealing with Chiari the longest....Posted by TracyZ on May 23, 2012 |
| 3 |
Just curious. What criteria exactly is it that makes a neurosurgeon a Chiari specialistPosted by Poptart on May 23, 2012 |
| 4 |
For those that have had decompression surgeryPosted by jencooper0217 on May 24, 2012 |
Added by Tonya J. 2 Comments 0 Likes
Added by Mellow 2 Comments 2 Likes
Wonderful post by Abby on the ADD Support site. It starts with:
“Some times in life, we come in contact with those who just don’t get it or understand what we struggle with. I have many times. I guess the ones that hurt the most is family members who sweep it under the rug and hide it. Being misunderstood goes for other folks too, who struggle with other afflictions. “
Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to info@bensfriends.org.
This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
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Posted by Ben Munoz on May 27, 2012 at 11:07pm 0 Comments 0 Likes
Dear Friends and Family of ChiariSupport,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
ContinuePosted by Twana on May 23, 2012 at 5:19pm 1 Comment 0 Likes
A lotta tears shed. Its apart of clensing and healing. As I was walking trying to talk because my Dr. seems to think my voice and random word search for my brain dosent always want to come up with the right word or I lose my train of thought.Even…
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