Welcome! You're not alone.
If your family has been affected by Chiari, consider Chiari Support your second home.
Got some QUESTIONS?
Check our FAQ PAGE.
Read More from our First-Time-User Guide.
First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.
All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
Arnold–Chiari Malformation, or often simply known as Chiari Malformation, is a malformation of the brain. Chiari malformation consists of a downward displacement of the cerebellar tonsils through the foramen magnum (the opening at the base of the skull), sometimes causing non-communicating hydrocephalus as a result of obstruction of cerebrospinal fluid (CSF) outflow. The cerebrospinal fluid outflow is caused by phase difference in outflow and influx of blood in the vasculature of the brain. Person with Chiari Malformation often experienced headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, impaired coordination, and, in severe cases, paralysis.
Read more from this link.
Hello all, just a bitt of background on me. first I am 35 male and have had bad head aches, occasional blurred vision, cant really call it ringing of the ears I would describe it as hearing the ocean in my ears like listing inside a sea shell, fine…Continue
Hello everyone! This is my first post here. I just have a few questions... My daughter was diagnosed with type 1 at 18 months. She has a very small sphyrinx and it has not changed since the initial MRI over 4 years ago. Last year, her MRI revealed…Continue
Been away for a while on vacation with wifey and kiddos. They had a blast at the amusement parks we visited. Smaller parks but it did good for me with my disability. Emma is a trooper she rode just about every ride she could with her uncle or…Continue
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Posted by Amy on July 26, 2014
Posted by Steve on July 29, 2014
Posted by Stephanie on July 28, 2014
Posted by Nykki on July 25, 2014
Posted by MJE on July 25, 2014
Thanks for your cooperation.
Welcome to ChiariSupport.org. We're glad you found our Community site. The purpose of this community is for people affected by a Chiari Malformation (types I-IV) to provide each other with emotional support. We are patients helping patients. We also have some parents/family members of those who suffer from Chiari Malformation.
What can you do on ChiariSupport.org?
1. Share your story on "My Page".
2. Start a new discussion on "Forum" and "Discussions".
3. Welcome new members with a comment on their page Welcoming Them To the group.
4. Share your photos/videos that inspire you or help you cope with living with Chiari Malformation.
5. Comment on other discussions and get to know your fellow members, make friends and get the support that WE ALL need.