ChiariSupport.org

Patient to patient support for those affected by Chiari Malformations.

What is ChiariSupport.org?

Welcome to ChiariSupport.org. Were glad you found the site. The purpose of this community is for people affected by a Chiari malformation (types I-IV) to provide each other with emotional support.

If you are looking for information about Chiari malformations, we recommend Organized Wisdom.

What can you do on ChiariSupport.org?
1. Share your story on "My Page"
2. Start a new discussion on "Forum"
3. Welcome new members with a comment on their page

This community is brought to you by BensFriends.org Patient Communities.

What is a Chiari Malformation?

Arnold-Chiari malformation is a malformation of the brain. It can cause headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, impaired coordination, and paralysis.

The incidence of Chiari 1 malformation, defined as tonsilar herniations of 3 to 5 mm or greater, is approximately 1 in 1,200.[citation needed] The incidence of symptomatic Chiari is less but unknown.

(Source: Wikipedia)

Latest Activity

Tharilyn Bunker is now a member of ChiariSupport.org
2 hours ago
Lee Ann Dowell and Abby are now friends
yesterday
yesterday
yesterday
on Thursday
on Thursday
Lee Ann Dowell updated their profile
on Thursday
Lee Ann Dowell updated their profile photo
on Thursday
Lee Ann Dowell is now a member of ChiariSupport.org
on Thursday
on Wednesday
on Wednesday
on Wednesday

The Chiari Institute

Blog Posts

michael Jones

An Introduction to Bensfriends.org !!!

We have some important information we are happy to announce!




As you all know we run support networks for people affected who have a rar

Continue

Posted by michael Jones on July 15, 2010 at 11:57pm

Ben Munoz

Bellingham woman shares her rare brain disorder for 'House' TV show

For four days in late February, best friends Laura Slyman and Kaitlin Sellereit made a mini-vacation out of their trip to the Los Angeles area. Th


Continue

Posted by Ben Munoz on May 2, 2010 at 9:12pm

michael Jones

Welcome Blog to"The Official Chiari Malformation Support Community"

Hi everyone, My name is Michael Jones and Ben Menoz we are the administrators for your new community CMSC. We here are very excited to being the newest and best support group for Chiari Malformation in the world. Ben and myself come from running communities for people with rare diseases. Since we have much experience in running support communities we decided to start more and help out even more people! Which led us to the making of a central site for all our communities which is Bensfriends.org.… Continue

Posted by michael Jones on February 19, 2010 at 11:46pm — 2 Comments

Forum

Ruby Jean Niduaza

Second surgery 6 Replies

how will i know if i need to have a second surgery?

Started by Ruby Jean Niduaza. Last reply by joelene hossack Jul 25.

Sam Marshall

Sports 4 Replies

Well, yet another headache. It stinks that I can't even play tennis without getting a headache. But I guess I shouldn't complain about it, I can still do fun stuff and play other sports but I guess I…

Started by Sam Marshall. Last reply by Sam Marshall Jul 10.

Sam Marshall

Headaches in the morning 6 Replies

I have headaches every morning and I was wondering if anyone had any suggestions about how to not have as severe headaches in the morning or if they knew a different way to get rid of it besides taki…

Started by Sam Marshall. Last reply by Sam Marshall Jul 10.

shalunya

Introduce yourself. 22 Replies

This site and forum is a great resource for us.  In effort to become more involved with this site let's take a moment to introduce ourselves.  We can be a great source of support for each other!!Tell…

Started by shalunya. Last reply by Scott Orn Jul 6.

 
 
 

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