"Happy Memorial Day and thank you for your service. My husband is a vet, all the men in his…"
Chiari Malformation - Online Support Group
We are patients and survivors of Chiari (types I-IV), here for your support.
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First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.
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Events
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Ride For Information
September 8, 2012 from 8am to 7pm – Fredericksburg, Virginia
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Conquer Chiari Walk Across America 2012 -BAKERSFIELD
September 22, 2012 from 7am to 12pm – TBA
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Please click on FIRST TIME USERS and WELCOME! tabs for helpful info, also the Help tab for Links . THANKS!
Forum
Memorial Day
Started by Christy Mullen in General. Last reply by wendyanne 17 minutes ago. 3 Replies 0 Likes
I know there are afew blue star momma's in here and chances are some vets, family of military. Happy Memorial Day to you all, and to my brothers and sisters in arms and their mommas~ if you ever need help or talk send me a message and I'll help all…Continue
Just Diagnosed... What do I ask?
Started by mlubbers in General. Last reply by Poptart 53 minutes ago. 5 Replies 0 Likes
I just found out last week that I have a Chiari Malformation. I have never heard of this before and just starting my research. Any help you can give me is greatly appreciated. They found it after the MRI I just had and now they are trying to…Continue
Is It Chiari or Not?
Started by Joanna in General. Last reply by Poptart 5 hours ago. 11 Replies 0 Likes
What about facial pressure and pain? I have always thought I had sinus problems but everytime they do a CT scan my sinuses are clear. They can see swelling but have never been able to tell me why It hurts all the time. Can the fluid buildup put…Continue
Feeling alianated.
Started by Twana in General. Last reply by mommy.of.two.5483 9 hours ago. 12 Replies 0 Likes
Have you ever had the feeling noone likes you or that your all alone. Thats what Im going through. I have been wondering what I have done in the past 4 years to lose sooo many famlie and friends. I have been waiting for my voice and speach to return…Continue
What is ChiariSupport.org?
Welcome to ChiariSupport.org. We're glad you found our Community site. The purpose of this community is for people affected by a Chiari Malformation (types I-IV) to provide each other with emotional support. We are patients helping patients. We also have some parents/family members of those who suffer from Chiari Malformation.
What can you do on ChiariSupport.org?
1. Share your story on "My Page".
2. Start a new discussion on "Forum" and "Discussions".
3. Welcome new members with a comment on their page Welcoming Them To the group.
4. Share your photos/videos that inspire you or help you cope with living with Chiari Malformation.
5. Comment on other discussions and get to know your fellow members, make friends and get the support that WE ALL need.
Latest Activity
Poptart replied to mlubbers's discussion Just Diagnosed... What do I ask?"I looked at your page noticed what you said about the MS with your siblings and the fibromyalgia.…"
Christy Mullen replied to Christy Mullen's discussion Memorial Day"I am going in uniform to a ceremony but Legion post is upset I am not feeling safe with what is…"
ModeratorLilyannes Mom replied to Christy Mullen's discussion Memorial Day
"Happy Memorial Day too you to- as an ex-army wife (my husband has been out now 8 years) we still…"
ModeratorLilyannes Mom left a comment for Carrie Green
"Hi Carrie and welcome I am also a mother of a 2year old Chiari baby - she is my miracle and I thank…"
mlubbers replied to mlubbers's discussion Just Diagnosed... What do I ask?"razzle51 I have been looking a Mayfield's site a lot. They are actually the team that I…"
Christy Mullen posted a discussionMemorial Day
I know there are afew blue star momma's in here and chances are some vets, family of military.…See More
Top Discussions
| 1 |
Surgery 5/24!Posted by Queen_Vic on May 23, 2012 |
| 2 |
I am interested on who has been dealing with Chiari the longest....Posted by TracyZ on May 23, 2012 |
| 3 |
Just curious. What criteria exactly is it that makes a neurosurgeon a Chiari specialistPosted by Poptart on May 23, 2012 |
| 4 |
For those that have had decompression surgeryPosted by jencooper0217 on May 24, 2012 |
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Chiari- Our Journey
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Medical Marijuana Patient
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Do you feel Misunderstood?
Do you feel Misunderstood?:Wonderful post by Abby on the ADD Support site. It starts with:
“Some times in life, we come in contact with those who just don’t get it or understand what we struggle with. I have many times. I guess the ones that hurt the most is family members who sweep it under the rug and hide it. Being misunderstood goes for other folks too, who struggle with other afflictions. “
"I am here because my daughter is here and i want to support her and learn more about chiari."
“I am here because my daughter is here and i want to support her and learn more about chiari.”- Member of Chiari Support Group
"Thanks for a wonderful site, and for all the information, I look forward to growing and learning..."
“Thanks for a wonderful site, and for all the information, I look forward to growing and learning more about Chiari here.”- Member of Chiari Malformation Support Group
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Blog Posts
May 2012 ChiariSupport Community Newsletter
Posted by Ben Munoz on May 27, 2012 at 11:07pm 0 Comments 0 Likes
Dear Friends and Family of ChiariSupport,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
Continue A lotta tears shed.
Posted by Twana on May 23, 2012 at 5:19pm 1 Comment 0 Likes
A lotta tears shed. Its apart of clensing and healing. As I was walking trying to talk because my Dr. seems to think my voice and random word search for my brain dosent always want to come up with the right word or I lose my train of thought.Even…
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