Welcome

Welcome! You're not alone.

If your family has been affected by Chiari, consider Chiari  Support your second home.

NOW....GET STARTED:

1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.

Concerned About Privacy

Since content and usernames are searchable on this site, you may protect your anonymity by creating a unique username.

To change username, click here. 

Does Your Pain Have You Considering Suicide?

First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

Photos

Loading…

Disclaimer

All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

 

What is Chiari Malformation?

Arnold–Chiari Malformation, or often simply known as Chiari Malformation, is a malformation of the brain. Chiari malformation consists of a downward displacement of the cerebellar tonsils through the foramen magnum (the opening at the base of the skull), sometimes causing non-communicating hydrocephalus as a result of obstruction of cerebrospinal fluid (CSF) outflow. The cerebrospinal fluid outflow is caused by phase difference in outflow and influx of blood in the vasculature of the brain. Person with Chiari Malformation often experienced headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, impaired coordination, and, in severe cases, paralysis.

Read more from this link.

Forum

Overdose? What is the intention?

Started by putty in General 10 minutes ago. 0 Replies

I recently had two episodes of overdosing on a drug known to you as KLONOPIN. I ended up in ICU both times with a breathing tube down my throat .I don`t really know if I was trying to kill myself,but all I know is that I wanted some relief from the…Continue

Need advice for my 13 yr old .. About neck fusion surgery.. Please !!

Started by debbay2204 in General. Last reply by jcdemar 2 hours ago. 3 Replies

Please Help.. My daughter april has had 4 major brain surgeries in the past yr due to her Chiari and now her bones in her neck are forming like a "S" , Neuro-surgeon says she is going to need neck fusion and i was wondering if anyone has ever had…Continue

Tags: Help, Advice, Surgery, Child, Malformation

Join Our Chiari Support Group. Connect With Others Like You.

Mobile App and E-Book Available for Download!

Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

putty posted a discussion

Overdose? What is the intention?

I recently had two episodes of overdosing on a drug known to you as KLONOPIN. I ended up in ICU…See More
10 minutes ago

Moderator
jcdemar replied to debbay2204's discussion Need advice for my 13 yr old .. About neck fusion surgery.. Please !!
"Deb, in my experience and reading about hundreds of others' with NSs, we are more often turned…"
2 hours ago
debbay2204 replied to debbay2204's discussion Need advice for my 13 yr old .. About neck fusion surgery.. Please !!
"Jenn, April has EDS and is having more tests run monday and tuesday this week to see how her bones…"
5 hours ago

Moderator
jcdemar replied to Cole's discussion I have to share this here, because this is pretty cool....
"Cole how wonderful! That is a great story and you deserve that pick-up. I'm also glad you are…"
7 hours ago

Top Content 

1 Insurance Denial

Insurance Denial

Posted by Rebecca on December 18, 2014

2 Sick Humor: The top ten worst suggestions commonly given to someone with a chronic illness

Sick Humor: The top ten worst suggestions commonly given to someone with a chronic illness

Posted by Abby on December 17, 2014

3 Well, Well, Well

Well, Well, Well

Posted by Nykki on December 19, 2014

Let's Keep It Nice & Clean

  1. No Spam
  2. No Personal attacks
  3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
  4. No Profanity, sexual references and illegal activity subject matter in the Chat Room.
  5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. Specific doctor or hospital names in a positive context are welcome.
  6. No sharing of members' posts to other sites without their express permission.
  7. There are many sites for discussing religion and politics. This is not one of them. Divisive posts about religion and politics will be deleted.

Thanks for your cooperation.

What is ChiariSupport.org?

Welcome to ChiariSupport.org. We're glad you found our Community site. The purpose of this community is for people affected by a Chiari Malformation (types I-IV) to provide each other with emotional support.  We are patients helping patients.  We also have some parents/family members of those who suffer from Chiari Malformation.

What can you do on ChiariSupport.org?

1. Share your story on "My Page". 
2. Start a new discussion on "Forum" and "Discussions".
3. Welcome new members with a comment on their page Welcoming Them To the group.

4. Share your photos/videos that inspire you or help you cope with living with Chiari Malformation.

5. Comment on other discussions and get to know your fellow members, make friends and get the support that WE ALL need.

 
 
 

Help Us Help Others

Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Bens Friends

To Support ChiariSupport.org, Click an Ad. Or Two.

Need a Doctor or Specialist?

Blog Posts

Struggles

Posted by NieNie0326 on December 19, 2014 at 2:23pm 8 Comments

In terms of my current bout of illness, I think I am improving. My headaches have lessened from an 8+/10 to a 7+/10 daily.. I do have a few days where my headache is a 6 but then it comes back with a vengeance and I'm on my butt for a few days…

Continue

Hope all is going well Salas and family !

Posted by ricki Lynn on December 19, 2014 at 1:00pm 0 Comments

I know your not on here Salas and his great supportive wife my prayers and thoughts are with both of yous at this very moment !  I hope everything went smooth and as  painless as possible. I have  been praying and I know god is with yous . Please…

Continue

Gift Store

© 2014   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service