Welcome! You're not alone.
If your family has been affected by Chiari, consider Chiari Support your second home.
Read More from our First-Time-User Guide
"To Know the Joy of Giving"
First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.
All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
The first run of our podcast on genetic disorders with our partner, RareGenomics, was a resounding success! You can listen to a recording of this podcast below, plus some bonus material from Dr. Perlman as she answers more questions about ataxia!
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How do I go about informing the school of what my son is not allowed to do because of his surgery. So afraid one wrong move while playing he will get hurt. we are almost four weeks post op. any suggestions.
Is it possible to avoid surgery all together and remain with just annoying symptoms that are not to the degree surgery would be required in the future? Trying to avoid getting cut on as I have found that outcomes seem so variable.Continue
Hi everyone. This has been such a valuable site to me! Thanks to all for sharing your experience here, especially the recent stuff on Dysautonomia and it's relationship to Chiari. The more dialogue out here the better. I have been pretty quiet…Continue
Welcome to ChiariSupport.org. We're glad you found our Community site. The purpose of this community is for people affected by a Chiari Malformation (types I-IV) to provide each other with emotional support. We are patients helping patients. We also have some parents/family members of those who suffer from Chiari Malformation.
What can you do on ChiariSupport.org?
1. Share your story on "My Page".
2. Start a new discussion on "Forum" and "Discussions".
3. Welcome new members with a comment on their page Welcoming Them To the group.
4. Share your photos/videos that inspire you or help you cope with living with Chiari Malformation.
5. Comment on other discussions and get to know your fellow members, make friends and get the support that WE ALL need.
Posted by jessica on May 16, 2013
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Posted by Patty on May 18, 2013
Posted by hopeful_in_del on May 14, 2013
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Wonderful post by Abby on the ADD Support site. It starts with:
“Some times in life, we come in contact with those who just don’t get it or understand what we struggle with. I have many times. I guess the ones that hurt the most is family members who sweep it under the rug and hide it. Being misunderstood goes for other folks too, who struggle with other afflictions. “
Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to email@example.com.