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If your family has been affected by Chiari, consider Chiari  Support your second home.


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Does Your Pain Have You Considering Suicide?

First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.



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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.


What is Chiari Malformation?

Arnold–Chiari Malformation, or often simply known as Chiari Malformation, is a malformation of the brain. Chiari malformation consists of a downward displacement of the cerebellar tonsils through the foramen magnum (the opening at the base of the skull), sometimes causing non-communicating hydrocephalus as a result of obstruction of cerebrospinal fluid (CSF) outflow. The cerebrospinal fluid outflow is caused by phase difference in outflow and influx of blood in the vasculature of the brain. Person with Chiari Malformation often experienced headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, impaired coordination, and, in severe cases, paralysis.

Read more from this link.


sudden sleep deaths.

Started by Michael Salasky in General. Last reply by Cole 3 hours ago. 3 Replies

I have not read the entire article but please weigh in on what you think about this.Here is the article link:…Continue

Any recommendations for a Neurologist is Houston?

Started by jencooper0217 in General. Last reply by Abby 3 hours ago. 4 Replies

I have recently been getting headaches at night that wake me up and I've been getting dizzy alot. I have not been seen since my 3 month follow-up appt with me Neurosurgeon. Thanks in advance!

Tags: Houston, Neurologist

A way for Awareness!

Started by Sydney. in General. Last reply by Abby 3 hours ago. 1 Reply

I bet half of you have seen a ALS ice bucket Challenge Video. So a bunch of us came up with an idea similar to this! We need awareness, and research. ASAP! I am so sick of Chiarians not getting the right treatment because doctors have no clue how to…Continue

Understanding Symptoms Help Update!!

Started by Naladove in General. Last reply by Cole 5 hours ago. 5 Replies

Thank you so much for everyone who replied to my previous  post. I was able to see the Nero on Monday.  Well after speaking with him he didn't think my pain had anything to do with the Chiari. He stated that it was just a birth defect some people…Continue

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Latest Activity

Cole replied to Michael Salasky's discussion sudden sleep deaths.
"Hmmm, I wonder then, if maybe SIDS is actually caused by Chiari. Maybe the babies have Chiari but…"
3 hours ago

Abby replied to jencooper0217's discussion Any recommendations for a Neurologist is Houston?
"Jenn We had a referral from Madere for a pain specialist. Here is the information for you. Face…"
3 hours ago

Abby replied to Sydney.'s discussion A way for Awareness!
"Great find.  Thank you."
3 hours ago

Abby replied to Michael Salasky's discussion sudden sleep deaths.
"Mike, I lost two very good chiari friends last year, who passed away in their sleep.  Both,…"
3 hours ago
Kone left a comment for Kone
"Thank you Abby :-)"
3 hours ago
Kone liked Rose Andrade's page First Time User Guide
3 hours ago

Beeba's discussion was featured

Warning to members

Hi there, hope everyone is having a good day. I need to put up a warning to all members. As this…See More
3 hours ago
Kone and Abby are now friends
3 hours ago

Top Content 

1 Just need to vent

Just need to vent

Posted by Cole on August 19, 2014

2 Understanding Symptoms Help Update!!

Understanding Symptoms Help Update!!

Posted by Naladove on August 17, 2014

3 Pseudo tumor cerebri/intracranial hypertension with Chiari?

Pseudo tumor cerebri/intracranial hypertension with Chiari?

Posted by Mom to Mck on August 15, 2014

4 Light at the end of the tunnel

Light at the end of the tunnel

Posted by Amy on August 19, 2014

5 Morning sickness (but not pregnant!)

Morning sickness (but not pregnant!)

Posted by Meg M on August 15, 2014

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What is ChiariSupport.org?

Welcome to ChiariSupport.org. We're glad you found our Community site. The purpose of this community is for people affected by a Chiari Malformation (types I-IV) to provide each other with emotional support.  We are patients helping patients.  We also have some parents/family members of those who suffer from Chiari Malformation.

What can you do on ChiariSupport.org?

1. Share your story on "My Page". 
2. Start a new discussion on "Forum" and "Discussions".
3. Welcome new members with a comment on their page Welcoming Them To the group.

4. Share your photos/videos that inspire you or help you cope with living with Chiari Malformation.

5. Comment on other discussions and get to know your fellow members, make friends and get the support that WE ALL need.


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Blog Posts

Post Op Decompression Revision and Cranio-Cervical Fusion

Posted by Burdzmom on August 10, 2014 at 8:12am 3 Comments

Hi everyone!! I apologize for not posting sooner about the procedure and the recovery. Life has definitely gotten BETTER!!!!!

July 8th was my revision and fusion by dr Rekate and dr Insinga from TCI. I stayed inpatient for 5 days then took the… Continue

Here's My Story

Posted by Naladove on August 7, 2014 at 5:13pm 1 Comment

Hello.  I am 27 and was recently diagnosed with Chiari 1 malformation.  I have always experienced really bad headaches all my life.  Didn't really think anything of it.  My doctors just always said I suffered from migraines and they wanted me to…


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