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If your family has been affected by Chiari, consider Chiari  Support your second home.


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4. Read or write a Blog
5. Join or Create a Group
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Check our FAQ PAGE.

Read More from our  First-Time-User Guide.

Does Your Pain Have You Considering Suicide?

First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.





All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.


What is Chiari Malformation?

Arnold–Chiari Malformation, or often simply known as Chiari Malformation, is a malformation of the brain. Chiari malformation consists of a downward displacement of the cerebellar tonsils through the foramen magnum (the opening at the base of the skull), sometimes causing non-communicating hydrocephalus as a result of obstruction of cerebrospinal fluid (CSF) outflow. The cerebrospinal fluid outflow is caused by phase difference in outflow and influx of blood in the vasculature of the brain. Person with Chiari Malformation often experienced headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, impaired coordination, and, in severe cases, paralysis.

Read more from this link.


Chiari Surgery Options

Started by Mrs. B in General. Last reply by jcdemar 6 minutes ago. 12 Replies

I am newly diagnosed, but have been seeing specialists for years trying to figure out what all was going on with me. I have had horrible headaches, neck pains, facial pains, numbness and so on. Anyways, long story short syrinx were found in spine…Continue

Surgery scheduled

Started by Elisa in General. Last reply by Rebecca 4 hours ago. 4 Replies

Sorry I haven't  been on in a little bit, we just had a funeral for my husbands aunt which his second mother. She fought a long battle with cancer and unfourtuantly the cancer won. She gave me a wonderful person to look for as a person who didn't…Continue

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Latest Activity

jcdemar left a comment for dpcorona
"Dp, Welcome! We are glad you became a member here. This is a kind and supportive group where we…"
1 minute ago
Profile Icondpcorona and Faith0214 joined Chiari Malformation - Online Support Group
4 minutes ago

jcdemar replied to Mrs. B's discussion Chiari Surgery Options
"Becky Kelly - so glad you are feeling so good! "
6 minutes ago

jcdemar left a comment for Faith0214
"Faith, Welcome! We are glad you became a member here. This is a kind and supportive group where we…"
12 minutes ago

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Thanks for your cooperation.

What is ChiariSupport.org?

Welcome to ChiariSupport.org. We're glad you found our Community site. The purpose of this community is for people affected by a Chiari Malformation (types I-IV) to provide each other with emotional support.  We are patients helping patients.  We also have some parents/family members of those who suffer from Chiari Malformation.

What can you do on ChiariSupport.org?

1. Share your story on "My Page". 
2. Start a new discussion on "Forum" and "Discussions".
3. Welcome new members with a comment on their page Welcoming Them To the group.

4. Share your photos/videos that inspire you or help you cope with living with Chiari Malformation.

5. Comment on other discussions and get to know your fellow members, make friends and get the support that WE ALL need.


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Blog Posts

In-Depth Look at My Surgery

Posted by Becky-Kelley on October 30, 2014 at 8:56pm 1 Comment

On the mend...I think. It's been 5 days and I am feeling okay. It is really hard for me to wrap my head around the idea that I won't be back to 100% in a few days. I want to be more social, but…


Dr. Rosner ???

Posted by Pitipati on October 30, 2014 at 2:23am 1 Comment

I've seen that many people in NC have had surgery with dr rosner. What are any of your thoughts on him? Does he do pediatric patients? Any other doctor recommendations in NC ?

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